My oldest son. My firstborn child. This is a letter I never wanted to write. I am counting on you. Of course I am. How could it be any other way? It isn’t fair. I know. I used to think life was fair. Then autism came on the scene in the shape of a 9-pound, […]
My husband Joe and I will be in Philadelphia on Friday, March 24th for a presentation about autism, marriage, and the messiness that is building a family. Join us! Tickets are limited, register here: https://www.eventbrite.com/e/559958580187
My son Jack has autism. He is eighteen. He was diagnosed when he was a little over a year. We were in a small room. The doctor was soft-spoken. Gentle. He wore a tie. Every once in a while, I catch a glimpse of that room in my mind’s eye. The brown carpet. The silver […]
Through the first class curtain I could see a man’s hand hovering over a book. It was not a young hand. It appeared weathered as it turned the page. Watching his fingertips traverse the words, my mind wandered until it settled where it often settles. My son Jack. The second oldest of our five children, […]
My son. Autism connected us together in the complicated ways. For eighteen years, we were a “we.” I spoke when you couldn’t find the words. My regulation was the barometer for your own. I fought. I sat in stuffy conference rooms and made a case for inclusion and behavior therapy. I wrote emails. I made phone […]
“What’s the big deal? He can come home and work for the summer,” she said breezily. The room was noisy. I was trying to balance a plate in my hand. Bon Jovi played weakly over the speakers. I’d just confided in this woman—a stranger, really—that my son Jack is struggling in his college program. He […]
“What’s your secret to staying married?” she asked as she handed my husband Joe the receipt. He and I exchanged tentative glances. The previous night’s argument hung over us like a cloud. The first time I ever spoke to him, he was standing in line to return a book. The sky was a crystal blue. […]
Dear Jack You probably don’t remember this, but when you were a little boy, I had a necklace I wore every day. It had the word believe spelled in silver script. Whenever you started to unravel in the way only a toddler with autism can unravel, I would hold the necklace up for you to see. […]
What if all we had to do was love our children? Love them through their mistakes, their poor judgment, their outbursts. Their vulnerabilities. Their moods. Their highs and lows. My son Jack is diagnosed with autism. He is eighteen. For eighteen years, doctors and therapists have told me what to do. Use social stories, try […]
I’m good, thank you for asking. I’m okay, I guess I’m okay. It’s been a rough couple of days, to be honest. Yesterday I had a Zoom meeting with my son Jack’s team. Things aren’t going well at his college program. Everyone is worried. He is having intrusive thoughts. He is talking to himself and […]