12 Comments

  1. Wendy Ellis
    January 23, 2023 @ 9:18 am

    Thank you for sharing. You are not alone! Autism is hard!❤️

    Reply

  2. Kim Moeller
    January 23, 2023 @ 10:21 am

    Sorry to hear things have been rough. I understand. Hang in there. I believe your son will find his place, just as i believe mine will someday.

    Reply

  3. Lisa S
    January 23, 2023 @ 10:56 am

    Today’s blog, like so many, hits very close to home. There is no finish line. Forever parents. Thank you for your courage to always share hard truths and feelings. You are not alone. What you share lets us know we are not alone either. Thank you.

    Reply

  4. Claire
    January 23, 2023 @ 11:46 am

    I found you when I started working with a young boy with the diagnosis. I went back and read every one of your posts. I can feel the rawness in your words. Good luck to your beautiful family.

    Reply

  5. juliep
    January 23, 2023 @ 2:55 pm

    hugs to you.
    Thank you for sharing. I understand.

    Reply

  6. Chris K
    January 23, 2023 @ 4:50 pm

    This brought tears to my eyes. Our daughter is 28 on the outside and between 5 & 10 on the inside. You are not walking the path alone. Between juggling the present and trying to plan for the unknown, it seems like there’s not a break. But you can do this. You both can. You all can. You will be in my prayers for strength and wisdom.

    Reply

  7. Ro
    January 23, 2023 @ 8:50 pm

    I’m sorry to read this as I always say to my husband autism is one step forward two steps back. Sending my best for the outcome you all want and need.

    Reply

  8. Janet Anderson
    January 23, 2023 @ 10:46 pm

    So much of what you wrote made me cry. Only God has the answers to WHY and someday we will to. Hope is the word I hang on to.I pray u can too. My thoughts and prayers go out to u all.

    Reply

  9. SCOTT WILCOX
    January 24, 2023 @ 2:35 am

    It never quits. I’ve been doing it alone since my girl was 7, will be 38 in March. Just when it seems all is well, something changes. That hurdle is defeated after sometimes several months of battles, and it gets smooth……..for maybe a week. Now my state is forcing me to drop some of her private insurance coverage and insist her specialist doctors fill out exhaustive waiver requests so we can keep their specialized services. The docs refuse to do anymore because they take so much time and effort to complete, and every one they have submitted have been denied anyway. Also, I thought I had found a really good group home for her as she’s been there 3 years, with an excellent advocate in the home manager. But last week when I suggested that she wouldn’t be able to scratch the caregivers if they cut her fingernails, he said he “didn’t give a damn what I think.” It just never stops……………………….Hang in there parents, and pray alot!

    Reply

  10. cindytheseeker
    January 24, 2023 @ 10:07 am

    Thank you, Carrie, for having the courage to share honestly, as always. Your words express thoughts both raw and beautiful. Hoping that you find the answers and peace for yourself, husband and Jack.

    Reply

  11. Claire
    January 24, 2023 @ 6:04 pm

    Oh I hear you…. One step at a time xx

    Reply

  12. Amy
    January 24, 2023 @ 10:04 pm

    You are not alone and your willingness to share your journey with Jack reminds all your readers that we are not alone in this. Thank you for sharing Jack’s progress to give us all hope through all of his accomplishments but also the reality of the fight to support him through his struggles. This autism journey is a challenge but also brings some pretty awesome people into our lives: you & your beautiful words, their therapists & teachers, other autism parents, Coach Shannon, etc. I hope Jack’s team finds a good plan to get him through this challenging time & to bring you some relief from your constant worries soon❤️

    Reply

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