6 Comments

  1. Missy
    February 24, 2014 @ 11:32 am

    This particular prism is a terribly wonderful thing to be entrusted with sometimes. I’m blessed to know that you will always be sharing what it’s like to possess it, and to help us see the beauty it can shine into our families’ lives.

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  2. amanda Nesbitt
    February 24, 2014 @ 12:12 pm

    Thank you, just thank you. As a Mom with several kids with a variety of diagnoses… (High Functioning Spectrum, ADD, ADHD)I love your honesty and just want to say thank you.

    Reply

  3. jessiemarvel
    February 24, 2014 @ 12:21 pm

    I have only just started following your blog. I am not caught up on everything, but this post makes me glad I followed. We have an IEP on Tuesday because … Well, mainstream kindergarten isn’t working too well. And how you felt the storm brewing in your tummy? Is how I have felt since Valentines Day when my son barricaded his classroom door and declared school was closed. Your post gives me hope. In every aspect of it. From your feelings at the IEP, to your son sliding off to school in the midst of a conversation, to the sting of paying more for adaptive lessons, to misunderstandings … all the way to your daughter “fixing” a situation by doing something only she (and her little sister self) can get away with.

    I am a ball of emotions as I text this out from my phone and just want you to know that I am glad you write the REAL stuff. I actually passed those fancy Easter photo tuxedos in the store yesterday … & had my own little mourning period. Sometimes, it’s all that keeps the volcano of emotions from just busting loose … Say, in the middle of a stressful IEP.

    THANK YOU.

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  4. Cate Pane: The Clear Parent
    February 24, 2014 @ 1:23 pm

    “Maybe the best skills I can teach Jack are not how to ski down the mountain or sing alone on the stage, but how to see every side of a problem.” Very profound but not easy to face. I think you have expressed your pain and disappointment beautifully. Thank you.

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  5. Aimee Seiler
    February 24, 2014 @ 2:18 pm

    This is a lovely post. As mom to a chronically ill child, I deal with this prism too. And the daily mourning. It is so hard as the mom to always feel like the bearer of bad news, the one to say that she can’t do this or she needs that invasive test, while at the same time pasting on a smile, trying to be upbeat and positive and make the best of things. Emily is the same age as Jack, and she too has been noticing and frustrated by her differences more and more, even though they are different differences. While every kid needs to learn that life isn’t fair, our kids learn this lesson early and often painfully. Sometimes there is simply no way as the parent to smooth things over, to make it hurt less. And isn’t that the hardest thing, to watch your child hurt and struggle like that? Jack is a lucky guy to have you two helping him find his path.

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  6. Heather Bowie
    February 25, 2014 @ 9:00 am

    This is heartbreakingly beautiful and complex. Thank-you for sharing.

    Reply

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