This Father’s Words
When it came to sending our son Jack to a college program, we weren’t exactly on the same page.
We talked about it night after night. We argued. We took turns making our case for why we should send him, and why he wasn’t ready.
In the end we decided to try.
Drop off day came. We packed up the car. We drove for three hours. We unpacked.
We carried in the comforter, the towels, the griddle for pancakes. We met with all the teams. Social pragmatics. Independent living. Academic support.
We said goodbye. It was perhaps the hardest moment of my life.
On the ride home you worried about fire escapes and the safest route outside of the building. I thought about socks. I wondered if I’d bought enough. I couldn’t bring myself to stretch my brain past footwear.
The day he was born, you held him tight.
You cradled all nine pounds, two ounces of him against your chest. You walked slowly around the room, humming a childhood tune.
This was before we knew of the road we were about to travel.
Speech therapy, education plans, behavior modification, social stories.
Guardianship, group homes, family court.
Autism.
You are a Forever Father.
Forever is big. It takes up a lot of space.
In the beginning, you chased him.
Through parking lots and malls and the grocery store.
You held his hand in yours, navigating crowds at parades, crosswalks, ski resorts.
You taught this boy everything you could think to teach.
You taught him about taxes, and budgets, and constellations across the dark night sky.
You taught him how to build shelves, and install light fixtures, and read the user’s manual.
You reminded him that when all else fails, follow the instructions.
When it comes to autism, there are no instructions. There is no user’s manual.
There is simply love inside words.
You never asked why.
Why our son?
Why this diagnosis?
To you, these questions were like stretching our fingertips too close to a burning flame. We’ll likely walk away with our hearts on fire.
Instead, you asked questions that begin with who, and what.
Who can this boy become?
What will it take to get him there?
You considered the questions. Then you got to work.
You showed him how to grip a fork, and tie a tie, and give a firm handshake.
How to look both ways before crossing a street, and shovel the snow off the driveway, and why you don’t tell strangers where you live.
You talked to him about politics. You remind him to always have a flashlight handy in case there’s no power. You help him climb a ladder to hang Christmas lights with his brothers.
Prayers in church, the history of rock music, how almost anything can be fixed with a chocolate chip cookie.
Gently you coaxed him to the couch on Sunday afternoons. You explained the art behind the game—strategy and sportsmanship and Hail Mary passes.
You made a fan out of him.
Beneath all the lessons is another message entirely—how to reach for all that is rightfully his.
You are scared.
You are determined.
You are fearless.
He grew taller than you. Still, he reached for your hand. You never cared who stared.
You tied your dreams to a tireless cloud. Then you chased it across the sky.
We will move mountains for him.
It might simply be different mountains.
Maybe there is no perfect answer. There is just me, and you, and this boy, and autism.
Rooting for the underdog is equal parts thrilling/scary/ordinary/new.
I guess, at the end of the day, all we can do is hope the world is gentle.
All we can do is hope we’ve done enough.
We are two pages in the same story.
The story of a boy, his autism, and discovering what’s possible.
He could change the game.
For years, he held for your hand.
Now, he walks beside you.
Together, you share the same stride.
You did this.
You taught him to reach, yes.
You also taught him how to stand on his own.
Cyndy
October 10, 2022 @ 10:24 am
You bring me to tears every time I read your words and I think what a lucky boy/young man Jack is that God gifted him with you both as his parents. Bless you all. I’m rooting for his college experience! ❤️
Emily Blampied
October 10, 2022 @ 10:27 am
Words escape me as I read and watch . . . and think of you all. It seems like Jack is doing a great job of being away at school, that you and your husband (the forever-dad) are coping , that all that each of you did and are doing has been successful, that neither of you will ever stop loving and worrying. And I wonder how your other children are doing. Be well, Mom. We care.
SCOTT WILCOX
October 10, 2022 @ 1:42 pm
Beautiful, Carrie. All of your posts touch me deeply with the dedication and loyalty each member of your family has to one another. Autism and other conditions which involve the intricacies of the mind are so delicate and often still unknown to us frail humans, that we proceed in an often cautious and try-and-fail direction for each individual until we find what works best for each. You have obviously found the successful path for Jack. Congratulations to all of you, Jack especially, along with momma and poppa. As I’ve been a single dad with a 37 year-old since she was 7, our paths have been different, with different outcomes, but still successful for her as she has attained complete safety, and happiness. Blessings to all on this amazing journey.