1. Susie
    September 19, 2022 @ 2:50 pm

    You are right in saying the fear of “I can’t die” is a constant – at least in the background, sometimes in the foreground during the hard times. It’s not that I don’t care as much about my neurotypical child, but the level of fear and precariousness I feel about my complicated child is so different and borders on desperation and exhaustion at times.

    I’m no expert in any of this, but I think the hope makes the difference and drives something we cannot and are not supposed to understand. That and never giving up. It is far from a straightforward or easy journey, but it’s worth it. Jack’s progress is wonderful to view from afar – I hope he keeps going from strength to strength.


  2. Tom G
    September 20, 2022 @ 10:32 am



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