With These Words
Once upon a time, a baby boy was born.
In a small apartment in Brooklyn, New York, people came to welcome the infant.
A young man named Anthony.
A 16-year old girl named Adua.
Carefully, they smiled at one another across the room.
Two years later, they were married.
They had six kids.
Their six kids had more kids, and in the way these things often happen, the family tree grew lots of branches.
Last week we called our son Jack to tell him his grandmother had passed away.
Jack has autism. He is eighteen.
He hates to talk on the phone. He answered in a huff. He explained he was playing Pokémon Go and curtly asked what we wanted.
He’d been at his college program for three weeks. He was happy.
We told him we’d pick him up, but he interrupted with an announcement.
“No. I will take the bus.”
He went online. He bought a round-trip ticket.
He scheduled an Uber to get to the station. He texted to say the bus was delayed. He told me he bought some snacks to eat while he waited. Gatorade and a bag of Skittles, because Skittles are his favorite.
For as long as I can remember, when it came to this boy and his autism, I wanted a crystal ball to predict the future.
Last week I watched my husband write a eulogy to honor his mother. His eyes were misty and sad. Every once in a while he read a passage out loud, and in his voice, I heard a small boy talking.
I saw my four sons carry a casket, the weight as heavy in their hearts as in their hands.
My tall daughter stood alongside her cousins, and one by one they gently placed flowers where a headstone will soon go.
Grief is stupid. It is pure sadness and despair. It’s bad enough that grown-ups must endure it. Watching your children do it too is akin to feeling your skin on fire.
Every Sunday, she cooked an elaborate dinner—lentil soup because every meal started with soup. Meatballs. Raviolis. Tomatoes from her garden and juicy yellow pears passed around the table.
His Grandma always rooted for him. Even when the whole English-as-a-second language-thing precluded her from understanding the diagnostic concepts of cognitive flexibility, executive functioning, and global delay.
None of it mattered to her. That’s the thing. They were simply black and white words on paper.
It’s easy to assume rooting for someone is like being a cheerleader—all sparkly pom-poms and glittery applause.
It’s not. It’s quieter. It’s gentle questions about school and stocking the pantry with Oreos and never demanding a hug because hugs were sometimes more than this boy could give.
I always thought a crystal ball would solve my problems. It would give me the answers.
But the truth is I wouldn’t have believed it anyway. I wouldn’t have believed my son would one day graduate high school or we’d find a college program or he’d connect with others and experience real emotion.
I wouldn’t have believed it because all the research and doctors and paperwork told me otherwise.
Maybe there is a good reason we can’t predict the future. Maybe it’s because we would miss the mostly sparkling magic slippery riddle of our lives in the shape of near misses, coincidences, and colorful blocks stacked into high towers.
He took a bus home.
He stood before her casket.
He openly wept.
With all these words, I tell you one thing and one thing only.
Anything is possible.
Life, death, grief, progress, hope, pride.
This is the air we breathe.
Life is full of a million special moments, and a thousand small hurts, all mixed up with tender mercies.
Which is a stupid way of saying growing a family is messy and ordinary and terrifying.
We work hard to make sense of what is expected of us, and who we actually are.
We worry about what’s coming, what’s next, what we should do after the thing we just did.
We try to predict the outcome, the risks, the possible drawbacks to every decision.
It’s only when we look over our shoulder that we begin to understand it at all.
He called her Grandma.
Her birth certificate read Adua.
This boy, this family, this bus ride, this story.
All because of a baby born in Brooklyn.
cbspira
August 8, 2022 @ 11:20 am
Wow. Wow. Wow.
I’m not sure if you’re going to get too many comments today. I was too busy reading through my tears (of shared grief but also so emotional reading about Jack’s responses. I lost it at the Skittles) to think of writing anything coherent, but then figured you deserved an explanation for the silence.
janelle olivarez
August 8, 2022 @ 11:22 am
So proud of Jack. I hoped so much he would find his independence as my son has. Ubers and Grub Hub are wonderful! Also, compassion and love are there and I think it’s easier to have emotions when you’re not overwhelmed with confusion and anxiety. My son is the same way with the phone. Haven’t talked for weeks and it’s “I’m in the middle of streaming. Gotta go.” 🙂
Joseph
August 8, 2022 @ 1:04 pm
I knew that Baby boy..
Smith
August 8, 2022 @ 2:19 pm
I’m in awe. It’s funny to be so proud of someone I’ve never met. As always, thank you for giving me hope. I’m so sorry for your loss.
TracyEllen Carson Webb
August 8, 2022 @ 8:21 pm
I’m so proud of your Jack. I’m glad I waited to read this until after I helped my son fill out a job application. All the feels are there today.
Donna S. Martz
August 9, 2022 @ 8:11 pm
Thank-you for sharing your world, Carrie! My family also lives in this Autism Galaxy. We have a 27 year old son named Andy. Since the pandemic he has isolated way too much. It’s hard to get him out of this rut that he’s in. I guess his dad and I should be happy that he is working and driving to work and back. He graduated HS but adamantly refused college. Of course we would love to see him get more education but, I can’t force a grown man to go to school. We have to keep trying. That’s what we do as parents. Your blogs and stories of Jack and family comfort me. Your mother in law sounds like she was a wonderful mother, grandmother, and gentle woman with a fierce love for her family. I’m so sorry for your families loss. It’s a comfort to know that Gods’ promise in the Bible is that our souls are alive and we all will be together again and death and suffering will be no more and he will wipe every tear from our eyes. Until then-we hang on and do the best we can and hope it does some good in the world.
Jane Harrison
August 10, 2022 @ 9:52 pm
A wonderful post about your husband and your son🙏🏻
Susie
August 13, 2022 @ 2:38 pm
God bless Adua and the far-reaching impact she has made and will continue to make on people’s lives.
People often underestimate the power of maternal love but it keeps the world turning. People also think autistic people don’t feel like neurotypical people, but going by my son the opposite is true. They are just very discerning and brutally honest about who they love (and great bull detectors imo). Completely all in when they love someone like Jack and his grandmother. Heartbreaking but also wonderful to hear about their bond. I hope that love gives your family strength.