6 Comments

  1. Tasha
    March 14, 2022 @ 11:11 am

    I wonder if the guardianship can be framed as you affirming that you will continue to love and support and guide him, even though he has turned 18. That it will be a partnership- I know you will be supporting him to make choices and to be as independent as possible. And I would tell him that probably lots of people with autism don’t have to go before a judge. Because their test scores and reports are so severe that it’s clear they cannot be independent adults. In Jack’s case, he needs to go and agree to this partnership with you. Wishing you all the best.

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  2. MFMyers
    March 14, 2022 @ 12:28 pm

    I have been there and it is gut wrenching. It is a necessary step for many of our kiddos but, oh so very hard. Thank you AGAIN for writing what is literally in my heart and mind. I appreciate your posts so much. It is almost like reading my journal. I am so sorry you have to go through this next step.

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  3. TracyEllen Carson Webb
    March 14, 2022 @ 12:56 pm

    I’m not doing guardianship. Mostly because I can’t afford it. Not because it shouldn’t be done.

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  4. Daile
    March 14, 2022 @ 6:49 pm

    I don’t think that what you’re doing is intentionally stripping Jack of any and all potential choices or sovereignty he may have regarding his own life — rather, you’re pledging to always be there for him and help him manage at least the financial and medical aspects of his life. I’m sure Jack will still be faced with many choices throughout his life as he grows into a man, and you and your husband will be there to help guide him in making those choices — it’s not like you’re locking him up for the rest of his life and throwing away the key. He still has a future. He still has a very full life ahead of him. You’ll just continue managing his finances, doctor’s visits, medical paperwork and prescriptions (which I’m assuming you do already, and have always done), in addition to helping to guide him and make decisions on his journey throughout life. As far as I see it, none of that denies him the chance of living a perfectly happy, fun, full, beautiful life. Why would it?

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  5. Audrey Bueno
    March 15, 2022 @ 1:31 am

    Hello, Carrie. This is Audrey Bueno, from Brazil. As always, your posts are incredibly well written. You have the amazing gift of being able to put such hard and complex feelings into words we struggle so often to find. This post, particularly, has touched me deeply. I’m only sure of one thing: if Jack got the chance to choose a mom before being born, it’s you he’d certainly have chosen. When the night grows colder in his heart, you’ll always be the sunlight that brings warmth to his world, and that’s just like winning the lottery in life.

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  6. Ros wilson
    March 15, 2022 @ 8:18 am

    H Carrie have just gone to court for guardianship
    For my son who is 18 years and two days
    Over he in Western Australia 🇦🇺 our kids are allowed to go to year 13 with help from school re work placement no college here will look 👀 at him each day and think what a blessing to have him many other problems adhd
    Autism and juvenile Huntington’s
    We are blessed Ros

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