1. Betsy Lussier
    October 5, 2020 @ 10:00 am

    Always so beautiful and heartbreaking at the same time. The guardianship issue hits deep. It’s an acknowledgement that some dreams don’t happen the way we had hoped. You are all blessed by one another.


  2. Julie
    October 5, 2020 @ 11:24 am

    Guardianship is a big decision but a necessary one for many of our kids. My husband and I have guardianship, but our son (age 27) is able to live in his own apartment with support staff checking on him and helping him with daily tasks. He loves his ‘independence’. When we were applying for guardianship 10 years ago, I was most worried about my son going before the judge, that it might be difficult for him to remain calm and not feel like he wasn’t good enough because he is in some ways very smart. Turns out we had the best experience – the judge called all 3 of us up to the bench and he asked my son ‘Do you know your parents love you?’…’Yes’…’Do you know they want the best for you?’…’Yes (still looking down on the floor)’…”Then I think you have it pretty good. Congratulations’…(slight smile from my son)…
    I hope you have that kind of experience.


  3. Wilson's Climb
    October 5, 2020 @ 11:42 am

    Carrie, you are amazing. Thank you for sharing this and so much of your journey. It means so much to so many of us and we are all rooting for Jack.


  4. Mia
    October 5, 2020 @ 2:55 pm

    We tried, and my son refused guardianship. He read the paperwork and understood enough to say, “that’s not me,” In my state, that means I would have to stand in front of a judge and get him declared incompetent. After 17 years of telling him he can do anything, I wasn’t going to do that. So now we are in supportive decision making. It looks like: he lives at home, he attends college, he works part time, I’m on his HIPPA and I’m his proxy, I’m on his bank account with him. I know his boss. She has my phone number. But he is in the lead. It’s so scary, but it’s what he wants. Guardianship may be what is right for you now, and supported decision making may be a step (or not!) later. Good luck!


  5. Janet Anderson ( grandmother)
    October 5, 2020 @ 3:31 pm

    I am watching my daughter trying to figure out the right choices regarding her 21 yr old son. College (part time) did not work. Two different jobs, did not work. A very frustrating time in their lives/where do we go from here?He has big goals for himself without knowledge to achieve them. You pray, you encourage, but do not have answers. You wake up everyday with hope for his future. There has to be a place, for this wonderful young grandson of mine to fit in and achieve satisfaction for himself, but where?


  6. Barbara Hewett
    October 5, 2020 @ 5:50 pm

    They had a wonderful piece on Sixty Minutes (10/4) about companies that are hiring autistic young adults for the strengths they have (attention to detail, scanning for mistakes in store ads). If you watch it, it might give you hope.


  7. kerri davis
    February 1, 2021 @ 10:46 am

    Hi Kerri here mum of 3 (out of 4) ! Kids with autism ,I read your blogs all the time,new ones and old ones they give me hope,,some sense of control in this comedy like life of ours! and the lovely feeling of connecting with someone who really truly gets your life. This one caught my breath,lump in the throat and made me cry ,well done and thank you for your time writing these posts,they are just wonderful and very much appreciated
    Thank you
    Kerri davis


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