6 Comments

  1. cbspira
    September 7, 2020 @ 9:39 am

    Insightful as usual.

    I’m wondering if you’ve heard of /participated in the SPARK project? It’s a massive collaboration of researchers trying to find a genetic component to autism by studying individuals with autism and their families.

    They analyze saliva of all family members (done at home via a kit) and have so far found some very promising leads.

    We came to it via CHoP (Children’s Hospital of Philadelphia) but have also received invites from Children’s Specialized Hospital and similar institutions.

    https://sparkforautism.org/portal/homepage/

    Reply

  2. Deb
    September 7, 2020 @ 10:36 am

    I think, and this is just my personal opinion, that autism and intelligence and sexuality and kindness and attention and so many other human traits that make us who we are, are on a spectrum. There is no right or wrong, there just is. Some of us, me, have more sad thoughts than others. Some of us shine joy. Some of us struggle and some of us don’t.

    My daughter is twenty-eight now and a diagnosis of autism has been added to the list of what’s wrong with her. Maybe they’re right? Who knows? What I do know is that my daughter is a deeply loving, interesting person, funny young woman who is constantly curious. She can’t talk but that doesn’t stop her from communicating.

    None of us will ever truly know another which is the sad part of being a human but that doesn’t matter either. You love him. You carry him in your heart, always. Who could ask for anything more?

    Reply

    • terismyth
      September 9, 2020 @ 2:51 pm

      My son is 27 and was diagnosed at 31/2. There are days I still don’t understand him. But he is very lovable

      Reply

  3. Eat Foodlicious
    September 7, 2020 @ 2:56 pm

    Beautiful son! 😍

    Reply

  4. Jeff Spahr
    September 7, 2020 @ 3:25 pm

    I don’t ever consider that something is “wrong” with my son Jack. He is a boy, now a young man, with autism. It is a part of him. For some of our children autism is a big part(almost the whole thing). For others it is a smaller part or a small part. I love all his parts for it is him. Do I wish the autism part was not there? Sure. But it is, and I love him.

    I also do not need to forgive myself. For what? For helping to bring this boy into this world? This caring, loving child? I won’t say ‘I’m sorry’. But I can say ‘you’re welcome’

    Reply

  5. terismyth
    September 9, 2020 @ 2:53 pm

    Your writing is beautiful and inspiring. You write in pictures and I see the color and joy and pain in your sentences. Congrats

    Reply

Leave a Reply

%d bloggers like this: