7 Comments

  1. Tracy Branchaw
    August 31, 2020 @ 8:26 am

    Hi Carrie. I have 2 nephews with Fragile X-they are 14 and 16. I’ve been reading your blog a couple of years now. Every time you post, it helps me understand them just a little bit more. They have 2 magnificent parents and 2 sisters, so their family is not so different than yours. I also work at Trader Joe’s where I see a lot of kids. Your writings also help me reach out (as best I can) to those kids with autism and their parents. I just try to make their day one bit happier. I know which ones will accept stickers and which ones I can only say hello to. I just want to say thanks for opening up your heart and life to those of us who need to keep trying to understand the life of autism a little better.

    Reply

    • Carrie Cariello
      August 31, 2020 @ 4:21 pm

      Thank you, Tracy, for reading.

      Reply

  2. terismyth
    August 31, 2020 @ 12:57 pm

    I hear your sadness. I hear your acceptance. It’s a journey. You’ve never responded to any of my comments, but I’d like to believe you read them.

    Both my boys suffer from anxiety. The older with ADHD can barely hold a job. The younger with Autism/Aspergers is terrified of Covid right now, he barely leaves his apartment. For months now, these boys (who are grown adult men now) are struggling with this crippling disease of anxiety. Both need medication, yet a mom can only do so much. At least you have helped your son Jack with this part of life.

    Being a parent is hard. Yesterday , my son Andrew the younger one wanted to make sure I don’t worry too much about him. How sweet is that? Well, when we didn’t hear anything for a month- No texts, no calls returned, no email. We did worry. It’s natural. I had help from a Word Press friend Angie who helped me understand that he would be okay. He would reach out when he needed to. And eventually, he did.

    Hope you take care of you Carrie. We are all here cheering and praying for you.

    Teri

    Reply

    • Carrie Cariello
      August 31, 2020 @ 4:22 pm

      Teri, thank you for sharing some of your own story, and seeing parts of yourself in ours. XOXO

      Reply

      • terismyth
        September 1, 2020 @ 1:22 am

        Yippee! Happy to hear from you.
        Honestly, you are a great mom and Jack will find his way.
        You are brave to share your story.
        We are all in this together.

        Much love
        Teri

        Reply

  3. Maureen
    August 31, 2020 @ 5:37 pm

    I can so relate. When we decided to put our son on Prozac a year ago I felt shame and defeat and soon it turned into the best thing we ever did. I felt regret in not doing it sooner. It was life changing for him and in turn for us. As I went to get his first prescription I remember thinking I was the only parent ever in the history placing their child on an anti-anxiety, antidepressant. That sounds ridiculous but people don’t openly talk about it. Once I started being open about it and he did too (we call it his worry help medication)so many started sharing their story. We need to end this shame of placing children on medication especially medication that regulates their brain/emotions/nervous system. Like so many say; if he/she had diabetes we wouldn’t hesitate. Thank you for being open about it and breaking the stigma : )

    Reply

  4. susie vanderkooij
    August 31, 2020 @ 6:57 pm

    Thank you…Thank you for all you do for us Moms out there who feel just the way you do…please leave him be just for a day, right? We just started trying to reach out to “friends” I always said and believe one day Jack and Adrian will meet….in the meantime they could write or email? Adrian is so incredibly similar to Jack, same age, so many other things I have read over the years about Jack, and I feel like I am reading about Adrian….

    Thank you, please know you can reach out to us anytime, you and Jack are a household name here and we would love to be friends with Jack….Cheers!

    Reply

Leave a Reply

%d bloggers like this: