If He Seeks You
Have you ever met my son Jack?
The first thing people usually notice is his height. He stands over six feet tall.
He wears glasses.
He chews his fingernails a lot.
He jumps around, as if he’s dancing to music only he can hear.
The truth is, you don’t simply meet my son.
You experience him.
The cadence of his voice.
The way he moves his body.
The ragged cuticles, and the downcast eyes.
His eyes are blue. Not a brilliant blue, but softer, like an old denim jacket you’ve washed a bunch of times.
The second thing people notice is how he can turn the conversation back to the topic that interests him over and over again. It’s kind of uncanny.
Maybe you wanted to talk to him about the weather or the price of tomatoes or whatever and before you know it, you are engaged in a full-on conversation about why OxyClean Stain Remover is better than Tide.
You see, Jack has autism.
Contrary to everything that has been written or said about autism, Jack loves people. As long as you don’t get too close to him or try to reach out your hand on his shoulder or anything, he will sit and talk your ear off for hours about soda, or the different kinds of ice cream in Friendly’s, or laundry detergent.
He might ask you if you ever buy anything from Amazon, or if you know what synesthesia is.
He is convinced he has it. He stumbled upon an article describing the way some people see music and numbers and letters in color. Maybe he does have it. It’s hard to say.
The thing is, he can tell if you are really interested or not. It’s fascinating.
For a child whose emotional pendulum swings within a limited arc, he has a finely tuned antennae for those who are fake, or inauthentic, or simply humoring him.
He just knows. I can’t explain it.
Very important scientists and doctors will also lead you to believe people with autism lack empathy.
I hear that one a lot.
I hear, oh, you know, people diagnosed with autism lack empathy and they can’t feel compassionate or sympathetic because they are too wrapped up in their own world.
I don’t know. That’s not my experience.
I mean, could he be more sympathetic? Maybe. Probably.
But one time his sister fell off her bike in the driveway and he came in the house screaming for help and then he ran up the stairs to get a Band-aid.
And if I say I have a headache, he goes straight to the medicine cabinet to find Advil because he saw a commercial one time that said Advil is the number one over-the-counter pain reliever.
However, if you are standing in the way of the last piece of pizza and Jack is hungry, well, be careful.
It’s complicated, that’s what I am trying to tell you. The topic of empathy and compassion are hardly black and white.
If you see my son Jack, say hello.
Say hello like you would to any regular person you meet.
He is not regular.
But he wants to be.
Now that I am raising a child with autism, I realize how marginalized those with special needs are. In public, they are the receiver of stares, or averted eyes, or—my personal favorite—the throat-clearing-foot-shuffle.
Jack lives in the shadows. He is the background to your foreground—the sideline to your playing field.
He doesn’t want to be.
He just is.
If you meet my son, don’t clear your throat.
Or shuffle your feet.
Say hello.
You don’t need to say it louder than normal. He can hear you.
He just might take a beat longer than most to answer.
Wait.
Wait for the beat.
You won’t be sorry.
Wait, and see where he takes you.
Who knows? You might learn about the latest flavor in Friendly’s, or how spiders live on every continent except Antarctica.
Wait.
Hear him.
If you listen long enough, he will let you inside of his dreams.
He will tell you the first time he felt the sunrise light his face, and the last time he ate a hotdog.
He will explain how he sees Thursday as purple, and whenever a Beatles song comes on the radio, he imagines a soft, cool green.
See, every once in a while you experience a golden moment with this boy, when he stops what he is doing and you stop what you are doing and you look at one another and you just know.
You are the rarest of people he seeks.
In this golden sun moment, you will hurt for him, and you will hope for him, and the smallest part of you will begin to heal for him.
He will change your mind about all you once thought to be true.
Mom. Tomatoes. The price is for $2.99 for a pound.
Okay, buddy.
For I do not like tomatoes. But you do. You love them.
cbspira
July 29, 2019 @ 10:03 am
You have hit the nail on the head with your depiction of empathy in action.
And your line about the tomatoes made me tear up – and laugh at the same time – because it concisely encapsulates my life as well.
Dineen Cappuccilli
July 29, 2019 @ 11:24 am
You have such a beautiful way of describing every detail of Jack. I feel like I know him. He is an amazing young man and I wish I could meet him. You are an incredible mom who helps teach others with your wonderful wtiting ability all about the details snd experiences of a person with autism.
I am a mom with a 15 year old autistic teen. She shares some of the same challenges that Jack does. Thank you for giving the world a glimpse of all the love you have for Jack and showing how everyone can give love in return. XO
Janelle Olivarez
July 29, 2019 @ 12:11 pm
We were in the Container Store recently and a little boy was being a bit naughty and his mom asked him to sit down and not move, which didn’t go over well. I pulled bubbles out of my purse and told him, “If you’ll sit down I’ll show you something special.” He hid behind his mom while I blew bubbles. “He has Autism”, she apologized and my grown son behind me popped up proudly, “I do too!” I smiled and said “that’s okay, he’s fine”. So I blew bubbles while he played with them and his mom finished what she needed to do on her phone. Then we had to leave. I wish him well.
Janet Anderson
July 30, 2019 @ 9:34 am
My grandson is 20 now. My daughter is his Mom. She well understands everything u write about. Compassion is there inside Jack, after all u and God share it with him each and every day as well as unconditional love the greatest gift of all. Never give up hope for his future. I pray for you, my daughter and all God’s special children. He will answer in his time and his way. God Bless.
GP
August 10, 2019 @ 4:54 am
Jack is very smart! He recognized that associating weekdays with certain colors is a form of synesthesia Here is a great article from Scientific American on synesthesia.
http://cbc.ucsd.edu/pdf/SciAm_2003.pdf