The Places You’ll Go (For Autism)
I was cleaning out the playroom this weekend, and I came across the popular book “Oh, the Places You’ll Go,” by Dr. Seuss.
I thumbed through it and I couldn’t help but think how my son Jack has so few opportunities for celebration.
I want him to know that is all okay. I want to remind him he is special, just the way he is. And maybe he won’t drive a car at age sixteen, or graduate high school right on time, or follow a traditional path in life, but he is an important human being nonetheless.
As for the driving? Who knows? He may just surprise us. It wouldn’t be the first time.
The Places You’ll Go
(for Autism)
Congratulations!
Today is your day.
It’s your day to be you,
there’s no other way.
You are special,
you are great.
How you dance and laugh and run like wild,
don’t change a thing, my wondrous child.
Fill your body with breath,
and feel the wind in your face.
For this is the day
you run your own race.
Sure, you’ll make mistakes,
it happens to all of us.
We start out on the wrong foot,
and we are late for the bus.
Our lunch is too cold.
The sun is too bright.
All afternoon, things are just not right.
This is perfect and normal and plenty okay.
Simply wave to the sun,
and eat only the bun.
For nothing will sadden your smile today.
And when it seems everyone is passing you by,
weightless winged birds flying high in the sky.
Don’t give a thought to the feathers around you.
Simply keep your head up, and fly the sky blue.
Keep your own pace,
this way is best,
For only you know,
the south way to go west.
Everyone is different,
I want you to know.
Some move very fast,
while others go slow.
Some get their license age sixteen on the dot.
Others take their time,
for driving is a lot.
Blinkers and detours, big things like that.
Traffic jams can make you lose your hat.
This is not an easy path you are on, my son.
Often misunderstood,
people think you are dumb.
Dumb you are not! Oh no! No way!
You are simply doing life in your own way.
You are like no one else
in this wide, wide world.
A flower whose petals
have not yet unfurled.
Potential.
Possibility.
Hope, and much more.
It’s hard to predict,
the things you have in store.
It’s true there will be
snoodles, snickers, and stares.
Mostly from those
still autism unawares.
Never you mind,
my tall strong son.
There are other battles to fight,
not previously won.
In fact, let’s not battle
or even fight at all.
Instead, simply tell.
Tell your story to all.
Tell about the ants
who tickle your arms.
And make you jump from your skin
during loud fire alarms.
Tell, my boy Jack,
about the time you were four.
When you battled the shape
of a wolf at the door.
Smanxiety.
For this word, there’s no rhyme.
All I can say is
it was a difficult time.
Tell them your favorite color is blue.
How you’d rather eat anything other than stew.
Stew is too mixed up, too gummy, too bland.
Tastes like that
your tongue cannot stand.
Chicken fingers, cheeseburgers, ice cream, and fries.
These are the foods
that widen your eyes.
You were born with autism,
a tricky disorder.
It brings out the ants,
and makes you crave order.
But it’s not all bad.
Really, it’s not.
There are lots of good things.
Undiscovered.
Unnoticed.
Things people don’t consider
in the remotest.
A memory for birthdays.
And cars.
And the weather.
In your cap,
you keep your own feather.
So much more
than a bell curve on paper.
Dog lover.
Brother, son.
And chocolate cake baker.
Never forget, tender boy of mine.
You are right, you are strong.
You are loved, and enough.
In fact, you are made
of some very good stuff.
A spirit unbroken,
and a will made of fire.
You are as beautiful as a song sung
by angels in a choir.
Your future is different,
yet still just as bright.
And soar you will,
to your own great height.
Oh, child of mine, I can’t wait to see
all the places you’ll go.
The person you’ll be,
and the ways you will grow.
Applause will be scarce
in your lifetime perhaps.
Many things you might skip,
or not have at all.
Graduation, a wedding.
A newborn who naps.
A promotion, or a raise.
A retirement in fall.
But from the sidelines I watch,
and I give many claps.
I clap for you, son of mine.
I do.
I clap simply because you are you.
Funny, smart, hardworking, and true.
My autism child.
My blue Jack-a-boo.
J. Anderson (Grandmother)
April 8, 2019 @ 11:18 am
Once again you have touched the heart of all. Lent is a time to stop and meditate on our place in this universe. Jack does not. He is right where God wants him to be. A beautiful boy, with a wonderful Mother and family and a spirit that walks with him.
Happy Easter to all.
C
April 8, 2019 @ 11:23 am
Beautiful.
Beth
April 8, 2019 @ 11:35 am
I love your rendition of “Oh the Places You’ll Go” Dr Seuss is Justin’s favorite. Justin is 20 and has Autism. There are some similarities between Justin and Jack. I wanted you to know Justin has a job as a Houseman at a Hampton Inn and he got to graduate with his class based on his IEP goals being met and he went to his junior and senior proms. He does not drive but he also has seizures so even if he “could drive”, he couldn’t. I remember feeling the same way as you when Justin was a teenager just beginning high school and it is turning out ok but not because I didn’t fight like a Mama Bear when I needed to. 🙂
Have a great week Carrie. I love reading your blog.
GP
April 8, 2019 @ 11:37 am
My 14 year-old daughter would be devastated to read that she may not get married. She has a list of characteristics for her future spouse and this list includes that he must be on the autism spectrum. Finding her “soulmate” is also on the top of her list of goals for the future. I found her list of goals extremely enlightening, and I believe in her and I believe that we as a family can help her grow and mature and help her find her place in this world. Even if right now, or based on her younger self, that might seem unrealistic. In talking to autistic adults, I learned that they often faced very similar struggles as my child when they were her age. Who knows what she’ll be able to do in another decade or so.
Lisa Mertens
April 8, 2019 @ 1:04 pm
Whenever I see pictures of Jack with your dog, Wolfie, I am renewed with hope for him and for others. He’s come so far from the boy who was deathly afraid of dogs! There may be more surprises in his future!
Mary
April 8, 2019 @ 1:30 pm
Great poem!???
Gabriel's Angels
April 9, 2019 @ 5:06 am
What an incredible, beautiful poem! Thank you, Carrie! I am going to print it out and read it with my 8 year old autistic son, so he will know he is not alone on this journey xxx.
Kim McCarthy
April 9, 2019 @ 12:24 pm
Love this!!