5 Comments

  1. GP
    January 24, 2019 @ 12:10 pm

    There are so, so many adults on the autism spectrum who successfully achieved some or all of the things that you fear your son may never experience, such as first apartment, college, marriage, children, etc.

    In fact, there are many bloggers who write about their experience as autistic adults. Quite a few of them are parents (some of their children are on the spectrum, too). The overwhelming consensus seems to be that we need to presume competence because individuals on the spectrum do learn, grow, and mature.

    It really, really helps to read about their experiences. Many of these bloggers struggled profoundly growing up, but gradually began to overcome many of their challenges. Some are non-speaking but communicate through writing. Some have learned to recognize oncoming meltdowns and have learned to find a safe space to weather the storm or to prevent it altogether. Others have learned that stimming is a natural way (as long as it is not harmful) to self-regulate or to focus because it helps to tune out excessive sensory input. Many have learned to discuss these things with their employer. But none of this can happen easily if we don’t let our teens have access to learning about the experiences of people who have walked the path before them.

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    • GP
      January 24, 2019 @ 12:14 pm

      Above comment, cont.’d:

      I recently found a Facebook blog page called Unashamed Voices of Autism. This page is community blog where adults and teens on the autism spectrum get to talk about their journey. They talk about such things as when they were diagnosed, what they would like neurotypical individuals to know about autism, what they would want other individuals on the spectrum to know, and much more. It is eye-opening! I am learning so many things that one simply cannot get from those of us who are neurotypical and hence, only observers of someone else’s experience.

      I look forward to showing my teenage daughter this blog page because I feel that she will benefit from a sense of community and knowing that she is not alone and that she, too, can look forward to a life that brings her happiness and contentment.

      Lastly, the book ‘Loud Hands: Autistic People, Speaking’ by Julia Endow is a collection of essays written by autistic adults. It is an emotionally demanding read, but I found it invaluable for coming closer to imagining what it must feel like to live in a society that is structured to only really meet the needs of neurotypical individuals; a society where even the most caring neurotypical individuals are biased by ableism.

      Reply

  2. GP
    January 28, 2019 @ 7:36 pm

    Oops, my 1/23 comment did not show up for several days. I thought it did not post because it was too long or due to the links. Then, I edited and reposted. Now, it showed up, and it’s a duplicate. Could you kindly please remove my 1/23 comment? I am very sorry for the inconvenience!

    Reply

    • Carrie Cariello
      January 28, 2019 @ 8:06 pm

      No problem! Thanks for responding!

      Reply

  3. Keri Thompson
    February 4, 2019 @ 5:22 am

    Thank you!

    Reply

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