Because of a Boy
Because of a boy, I know things.
I kind of wish I didn’t.
But I do.
I know unconditional love it not easy love.
Oh, it is not.
Unconditional love is gritty, hold-your-head-in-your-hands hard.
It is determined.
It is raw.
It is a choice.
Because of a boy, I know
that being alone is not the same
as being lonely.
Right now, I am alone.
But I am not lonely.
I am sitting, typing, thinking, reading.
Yet in a giant crowd
laughing, talking, head-nodding,
I can be lonely.
Alone.
Lonely.
Because of a boy,
I know a life different from my own
is not a life less lived.
This is not exactly true.
I do not know this.
I am trying to know this.
Every day, I remind myself.
A life without college-marriage-kids-retirement
is still important, and meaningful.
It still has tremendous value
and a different kind of joy.
Joy.
Value.
Joy.
Joy.
My joy is seafood-yoga-laughter-books.
His joy is movies-baking-quiet-music.
I like movies.
But I don’t like to bake.
I love quiet.
Some days, it feels like
I hardly know him.
Yet I know his heartbeat better than I know my own.
Because of this boy,
I know there is a reason for medication.
I know the sound of the
white lid click-click-clicking.
Pills shaken into an upturned palm.
Alleviating—no, lessening
anxiety’s cruel burden.
Because of a boy,
I stay in my lane.
Head down,
one foot in front of the other.
I don’t look up.
I don’t look around.
I don’t judge.
The tantrum in the parking lot,
the headphones at the table,
the wan, strained smile.
I have been there before.
I will be there again.
I know if compassion is a house you build,
then storytelling is the key to the front door.
It is the entrance to the rooms and the hallway and the kitchen.
It is the only way to open the windows,
and bring in the light.
And so I tell our story.
I offer it to you,
the light and the dark.
The good and the bad.
The chocolate chip cookies and the screaming and the little white pills.
Some days, my story is all I have to give.
I know defeat.
I know despair.
I know distance from my own child.
I know what it’s like to beg for a hug.
And long for connection.
Every single day,
I wish it was easier to know him.
Still, I have learned over and over again,
to ask one question.
Where do we go from here?
Because of a boy,
I know the answer.
We go forward.
Because of this boy,
I get up out of my bed,
and I swim against anxiety’s angry tide,
and float amidst the silent stares.
I hold my breath, and I wait.
This boy.
His name is Jack.
He has autism.
Because of him,
I know things.
I know tolerance.
And judgment.
And disappointment.
And grace.
I know life is complicated.
And hard.
And easy.
And ordinary.
But mostly, I know a different kind of joy.
My son.
Jack-a-boo.
Mary Beth Danielson
November 26, 2018 @ 11:54 am
This couplet is perfect and stunning.
“I know if compassion is a house you build, then storytelling is the key to the front door.”
Most of what I know about being part of a good (or at least not toxic) neighborhood around people and families that have autism in them – I know from your stories.
lily cedar
November 28, 2018 @ 7:52 am
Beautiful writing. My disabled daughter I’ve figured out how to love but my alcoholic son I have yet to figure out how to love. Thank you for reminding me of unconditional love.
Audrey Bueno
November 28, 2018 @ 11:57 am
Life, disappointment, ordinary, despair, defeat, joy, some kinf of joy, love, some kind of love. It all within a human heart. It all every minute. Every hour. Every day. Every step we take.
soupandsanity
November 29, 2018 @ 10:46 pm
My comments seem to have a certain sameness about them,so I don’t always comment but what I want most to say is “Thank you”!
This post, in particular has that quality that is the hallmark of your writing. It captures the simultaneous banality and transcendence of everyday life in your family, and perhaps in all families, even when Autism is not in the picture, but especially when it is.
I agree with one of the earlier comments that spoke of your lines about compassion being a house that you build and storytelling being the key to the front door. Your stories give us a glimpse into moments in your life that have echoes in our own-a way to build that compassion where we can all live.
You and your family will be in my thoughts as the holidays move in and along, away and back again.
Again, Thank You!
Mary Bishop
December 3, 2018 @ 5:37 am
Your definition of unconditional love is so well put: “Unconditional love is gritty, hold-your-head-in-your-hands hard.
It is determined.
It is raw.
It is a choice.”
May God give you, me and all who desire to give true love, the strength and the courage to live this unconditional love that is hard.
Bless your Jack and your whole family.
Thank you for sharing your path of unconditional love which is so hard but at the same time real and beautiful in all it’s difficulties.