Chances of Autism
If you’ve ever watched from afar,
curious,
interested,
unsure.
Maybe in the mall,
or the grocery store,
or the sandy blue beach.
Right away you noticed
twitching legs,
a silent, internal rhythm.
Then, without warning,
screaming so loud it takes your breath away.
More than a tantrum—bigger than a fit.
Discomfort.
Distress.
Anguish.
Like the sun is too bright,
the automatic doors too loud,
the flurry of people in and out too painful.
A mother’s struggle
to calm thrashing limbs
and quiet the storm.
A father’s brave half-smile.
A brother’s rounded shoulders.
A family.
If you have witnessed this,
then chances are, you have seen someone with autism.
If you’ve ever talked to a complete stranger about
planes, or trains,
or the time you first saw a rainbow,
or the day your grandma died.
And it felt like the first real conversation you’ve had in a long while.
No small talk.
No hollow ring.
No meaningless banter.
Just the gritty, authentic truth.
Life, death, color, movement.
In yourself,
a quiet awakening.
A refreshing reveal.
Grandma’s scones,
your first kiss beneath a colorful sky,
a cross-country trip in the back of a train.
If you walked away
wishing for a few more minutes,
to remember the rainbow and the fire,
and your grandma and her sweet, sweet smile,
Then chances are,
you have talked to someone with autism.
If you’ve ever looked across a crowded classroom
and wondered how to reach the child with the downcast eyes.
If you’ve ever struggled
to bring goals written on paper
to life on a math worksheet.
If you’ve ever driven home after a long day,
remembering the one who sat alone during lunch.
Who cried loud crushing tears
because the pencil was wrong
and the line was too long.
If you’ve ever learned from the learner,
then chances are,
you have taught someone with autism.
If you’ve ever read the book
Going on a Bear Hunt
nine hundred million times.
Or Googled
not meeting developmental goals
why does he scream all day
full-time residential care.
If you’ve ever longed for the things
many take for granted.
A hug.
A smile.
A conversation.
If you’ve witnessed
breathtaking courage
in the face of oppressive anxiety.
Or observed the purest delight
in the simplest things
life can offer.
Candles burning brightly
atop a homemade cake.
Halloween decorations
on the first of October.
A favorite song on the radio.
If you believe in something bigger
than him, than you,
than this.
If your heart burns
as bright
as a thousand fiery suns,
paired in perfect harmony
with the wings of one hundred blackbirds
beating against the purple night sky.
If you have lugged hope around
like a bag filled with a million pebbles,
and felt the harsh sting of defeat.
Then hope.
Defeat.
Hope.
Defeat.
Hope.
Hope.
If you recognize yourself in these words,
these moments,
these pebbles,
this sun,
chances are,
you love someone with autism.
[ watch listen learn love ]
terismyth
September 24, 2018 @ 1:12 pm
Hi Keri
I love that he likes to bake. I also love to be in the kitchen baking and cooking for family and friends. I can definitely relate to your posts. Don’t ever give up hope. My autistic/ asperber son is doing well.
He moved out and is taking computer coding classes. I’m hopeful he can provide an income for himself with this career choice.
Take it one day at a time.
Thanks for sharing your lovely writing with us.
Teri
Karen Lesmerises
September 24, 2018 @ 8:17 pm
Would you do an inservice on Autism for the Merrimack belknap Head Start program?
Sarah Brandt
September 26, 2018 @ 1:09 am
You touch…my heart, give my daily resolve…strength and my mind…courage. I fight the daily fight, not usually on the winning side of this war with HFA. If only I could let the world see my beautiful 11 year old son, through my eyes. Then they’d know. Until then, I look to your blog, every Monday before before bed, to let me know i am not alone and to remind me to set out my armor for the next day. Thank you for your courage in blogging and your love for your whole family. You’re family will always be in my prayers.