1. Keri thompson
    June 11, 2018 @ 2:18 pm

    This is beautiful. Thank you.

    You are so right. It is so true.

    I am the mom of a 16 year old boy with autism. It is profound. My family and I often wish he could talk like your Jack. But that is not what God/universe/life/higher power/whatever gave us, right?

    Don’t even know you but I love you. I scour your writings … I guess for shared experience and hope.

    Thank you.


  2. Molly
    June 11, 2018 @ 3:15 pm

    Ugh! My heart! This. Again ?.


  3. Melissa Baird
    June 11, 2018 @ 3:30 pm

    The line that most resonated with me was “I don’t want to survive this boy.” This captures what I feel, too. Wanting to not just simply survive. But also feeling like it takes everything I possess to simply survive. Thank you for sharing, as always.


  4. Sara
    June 11, 2018 @ 5:31 pm

    Hi Carrie,

    This is a tiny little thing but it is what popped into my brain regarding the issue of needing random things from the store. Do you keep a shopping list? When Jack defines a needed item can you put it on the list and then tell him you will get it on the next store trip and try to give him a realistic day that will happen? That way when he starts to perseverate on it you can remind him it’s on the list, it will be taken care of and maybe he can relax a bit and you won’t need to make random trips to the store?

    Of course he will have to trust you that it will actually happen and if Jack is anything like my son, well, he is an 11-yr old nihilist so he trusts no one and nothing. 😀

    Best wishes to you!


  5. Joanna Fisher
    June 11, 2018 @ 6:40 pm

    You are loved because you are SO honest about your feelings. Don’t change.


  6. Jenny
    June 12, 2018 @ 3:49 am

    Your blog lifts my heart and breaks it at the same time. Thank you for your honesty about what most of us who have children with autism experience. It makes the journey less lonely and frightening.


  7. Janet Anderson (Grandmother)
    June 12, 2018 @ 8:09 pm

    Carrie, I am a grandmother of a nineteen yr old grandson with autism. Although I am not with him everyday like my daughter is, I want you to know I feel the pain, the questions you ask yourself along with all the frustrations. I do not have the answers only faith, hope and a God Can that I put a note in everyday knowing, I can’t change anything but God Can! To all Mothers & Fathers please read the prayer Footprints in the Sand. Happy Father’s Day and thank-you Carrie for bringing us into your family.


  8. Susan Swims
    July 5, 2018 @ 8:52 pm

    This hit me right where it counts, in the center of the chest: Please, don’t take me too soon.


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