1. Mary Beth Danielson
    September 11, 2017 @ 10:29 am

    “Or maybe I should mention that watching him interact with people is like the most awkward, fascinating social experiment I have ever seen. Especially the soup thing, that was really something.” This is a really funny line! I read years ago when working with refugees from dangerous countries – that the best humor comes from people who live under oppressive regimes. I would say the oppressive regime here is the iron rule of “Be Normal Like Us” and you and your family know what a hoax that it.


  2. cbspira
    September 11, 2017 @ 10:34 am

    In my community there was a family who lost 4 children to Tay Sachs.
    The father channeled his pain into genetic research and now runs an organizing that checks whether both individuals of a prospective couple are carriers for certain fatal genetic diseases. They were successful in closing down the Tay Sachs ward of a NYC hospital because no more children were being born with the disease.

    The above I can handle since it happens pre-conception. I can not handle France’s campaign to eliminate Down syndrome once a fetus tests positive for the mutation. They haven’t cured or eradicated the disease, they’ve only murdered those who are affected!

    How does this relate to Autism? If they ever identify “the” gene and can prove that by preventing two carriers from having children then the disorder will be eliminated – then maybe I’d support or at least not be anti such a measure. I have 2 kids diagnosed with ASD, so maybe that would have been something to think about…

    However, if the only way to test (and “eliminate” the disorder) is once the baby is in utero then no dice.


  3. Heather Mackenzie
    September 12, 2017 @ 9:38 pm

    My son’s name is Jack too and when I read your posts, it’s like you are reading my mind. I hear you. Thank you for putting the words together so beautifully.


  4. Patti
    September 14, 2017 @ 1:33 am

    God picked you to be his Mom. Whatever you do, it will be the best thing for Jack, because you love your beautiful son more than anyone could imagine. Don’t second guess yourself.
    Thank you for the window into your lives. Take care.


  5. MELewis
    September 26, 2017 @ 1:02 am

    This is just so beautiful, and so scary and brave. And absurd. Windex? What will the internet think of next? Wishing you great courage to keep on keeping on.


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