1. John Fons
    April 3, 2017 @ 11:15 am

    You’re doing fine.


    • Barbara R
      April 3, 2017 @ 7:53 pm

      Barb R ,You’re a fabulous Mother. He is a gift to your family. Who would you and your husband be if you never knew him . I bet your hearts grew much larger by raising this child . No one can judge you . You don’t have to be sorry . Our world needs to wake up to the needs of the different . God chose your son to be a part of that awakening. Bless you all !


  2. Mereceda
    April 3, 2017 @ 11:25 am

    I am right there with you. Attended a Christmas concert. Sat off to the side so that my 7 y.o. could dance and do whatever she wanted without interrupting other attendees. She wasn’t loud. Just moving. At intermission, another guest asked her how old she was, the proceeded to tell her she’s old enough to sit still and not interrupt other guests. I still feel the sting of the other guest saying ‘it doesn’t matter’ when I told her she’s autistic. Said guest arrived with a walker. Ironically, that even if the disability is seen or communicated, OTHER people can be jerks, too. If I were to ever meet you, I’d hug you. Love how you can put into words what lots of people are living and are not so eloquent. A colleague, ahead of our diagnosis, also mentioned his kid’s teachers tried to recommend they ‘drug’ his kid who couldn’t pay attention, and he would not allow it. Your analogy of providing insulin to a diabetic and a wheelchair to the paralyzed is excellent, and I wish more people understood.


    • Kim Black
      April 4, 2017 @ 3:04 am

      You should have taken the walker away and told the guest they were old enough to walk without assistance! Some people just suck!


  3. MeanderingDude
    April 3, 2017 @ 11:42 am

    Carrie, all your post speak to me and help me realize others don’t see what is happening between our ears. It could be a person with depression, or some other mental disorder. I take hormone injections to treat prostate cancer. They cause physical and mental changes. The physical is usually obvious, the mental is menopause for me. My friends know and mostly understand. Those that don’t know me think I am just “bitchy”. (if they only knew) I try to remember your blogs when I act weird and get a nasty response.

    Blessings on you and Joe. Blessings on your whole clan.



  4. Mary Beth Danielson
    April 3, 2017 @ 1:17 pm

    Because of your writing, and other things I’ve read in the past few years – I respond differently now. When a person acts “out of control” – I no longer assume “poor behavior”. I wonder and stay calm. This makes my life easier, too. I don’t have to have opinions about stuff I don’t understand.


  5. agshap
    April 3, 2017 @ 7:15 pm

    The world should read your posts and then maybe they will understand. I am amazed at what you know what to do. My grandson cannot stand very loud noises. The day my house alarm was being fixed and it went off during testing – I froze and didnt know what to do. After the initial shock I decided to hold him to my chest while placing my hands over his ears. This calmed him down at least and any future repairs are done when he is not over….you must have an infinite amount of patience.


  6. Kim Black
    April 4, 2017 @ 3:18 am

    The world would be all nice and tidy if people with special needs, physically disabilities, the very young and very old, too fat or too skinny, sick people and any other “oddball” would just stay tucked away quietly in their homes or an institution. Then wouldn’t it be wonderful to go places and do things without distractions?

    Of course it wouldn’t!!

    I don’t know that I would have the patience you do and others do if someone belittled my kid or felt they shouldn’t be involved or included because they can’t sit still and act like other kids their age. I am afraid I would not be telling people my kid had autism, I would be telling them to bite my ass and mind their own business.

    Dirty looks and passing judgement is not my thing. I treat every single person I encounter exactly as I want to be treated. I don’t care who they are or what they are or why they are. If we spent more time loving and supporting each other instead of tearing others down, we would all be better off. That is the world I want to live in!

    I think it is awesome that your big family has all the big adventures and opportunities you have. Leaving one child out of any of that is wrong, you are all in this life together and that does not need an explanation or an apology!!


  7. Erika Esterby
    April 4, 2017 @ 10:55 pm

    This book will speak to you! http://www.facesofautismbook.com
    Not just autism acceptance, but autism ADMIRATION. Celebrates the magical inner beauty of children with autism through beautiful words and photographs. Like the end of your blog says, “This is what autism looks like”
    Thank you for sharing your journey.


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