Can You Tell?
I guess I’m wondering what you think of him.
I know I shouldn’t care, but I can’t help it. I do.
He doesn’t care, not one little bit. In fact, I don’t think he even notices when people stare at him or kids point to him.
I don’t care for the reasons you might think. I’m not self-conscious, or uncomfortable, or embarrassed—not in the least. I never have been, even when he throws tantrums because Redox doesn’t have the latest copy of Disney’s Cinderella.
No, I’m not embarrassed.
I’m curious.
I’m curious what you think when you see us walk across the parking lot together and he is holding my hand. I mean, he’s not a toddler. Or even a preschooler. He’s practically a teenager and he’s almost as tall as me and he wears sneakers that are bigger than mine. And yet he holds my hand whenever we’re crossing the street or near cars.
If my hand isn’t free because I’m holding bags or whatever, then he tucks his arm through mine and hugs my elbow. He usually keeps his head down and stares at his feet.
Then all at once, he bursts into a flurry of motion and nervous tics. He rubs his nose. He pulls at his hair. He jumps.
What did you think when you saw him jumping?
I know you noticed it. That’s usually the first clue in the mystery game called What Is Wrong With That Boy?
You know, the way he hops all around, with his two fingers in his mouth. If he’s really agitated, he grunts once or twice.
What did you think, when you saw him do that? I couldn’t tell by the expression on your face. You were kind of half-smiling, but your eyes looked a little surprised.
Usually I keep my hand on his shoulder, or the middle of his back. This is to make sure he doesn’t bump into you, or tip over a display of canned beets, or knock over the little girl walking down the aisle. Sometimes I kind of massage his shoulder blades.
What do you think when you heard me talk to him quietly when we walked through the automatic doors?
See, he heard the classical music playing over the speakers and all of a sudden he hates classical music and he starts to hit his head with is hands if he hears it. I don’t know why except he tells me it reminds him of a time machine.
Can you tell what he has, or who he is?
There are moments—brief, short periods in the day—when he looks, well, regular. I hesitate to say normal here, but you know what I mean. His tics cease and his body is quiet and he isn’t shouting about how classical music hurts his ears.
Yet when he’s off, he looks very, very off—that’s kind of the code words his dad and I use to describe him.
Oh, Jack? He’s pretty off today.
Off can mean a bunch of things. It can mean he’s anxious, or jumping a lot, or swearing.
It can mean he hasn’t slept, or he’s hungry, or his sneakers are too small but he hasn’t figured out a way to tell me yet.
A lot of times when I talk to him say things like come on big boy and you got this buddy, but I’m trying to stop doing that so much. After all, he’s twelve, and even though emotionally he’s closer to seven or eight, it still seems silly—demeaning, almost—to call him my big boy.
A lot of times he stands very, very close to me and uses his left hand to twirl my hair until I flick his hand away impatiently. I have never liked people playing with my hair, ever when I was a little girl.
I know you can see something is different—not wrong, exactly—but unusual about him.
Maybe it’s the way my eyes are always darting around, looking for him and making sure he didn’t get distracted and wander away from me.
He’s always been a little bit of a wanderer, and although he seems to be outgrowing it I can never be too sure. He’s either right next to me, breathing in my ear and twirling my hair and telling me a million times that red apples are better than green apples, or he’s gone.
When he was four, I lost him in the mall. One second, he was by my side, and the next he was gone. He had disappeared like a cloud in the sky. I was frantic. He only said about twenty words at the time and he never, ever answered to his name and yet he was so fast, so silent, that I knew he could be anywhere.
I pictured him curling up inside of a storage cabinet somewhere and falling asleep.
I pictured him walking out of the big glass doors and stepping in front of a car.
I picture someone taking him.
This is a very awful memory for me, and my heart squeezes tight when I think about it.
He can appear absent, preoccupied. Behind his glasses, his blue eyes look vacant—aloof. It seems like he’s staring into space.
Do you think he’s dumb?
He isn’t dumb. Please don’t think that.
He is every question I have ever tried to answer.
He is the face of a statistic, the perfect-not-so-perfect combination of DNA, a time machine full of mystery and delight.
He is my son. And he has autism.
Talk to him. Talk to me. Ask us a question. Ask us anything.
Be curious.
Be kind.
Help me keep him safe.
Ask him which kind of Oreos he likes better and tell him where you were born and, if you have an extra few minutes, chat with him about your favorite kind of music.
After you finish talking with him and you pay for your milk and your eggs and your bread, then do one more thing for me. Please.
Tell.
Tell your neighbor when you stand together at the end of your driveway, collecting your mail.
Tell your Aunt Marcia when she calls to ask if you can come to dinner next week.
Tell the mailman.
Tell your wife.
Tell them how today, you saw a 12-year old boy with autism in the grocery store, and he was interesting and funny and smart and handsome. Tell them about the statistics and the Oreos and his slow, sweet smile.
Tell them how high he can jump.
the jay train
January 23, 2017 @ 8:53 am
Personally, I always smile and think “(S)He’s one of us.”
I may or may not try to catch the parents eye so they can see the support in mine.
Dottie Irwin Melko
January 23, 2017 @ 10:00 am
Oh you have spoken to my heart!! My grandson is 16 & awesome!!! But I remember the days he was a “runner”, & he banged his head so often he developed a bump on his forehead. He lives in video game land & movies, but he is mainstreamed in school, sings in the high school choir, & is loved by his classmates!! He looks no different than you & I. He will now smile at you then quickly look over your shoulder; about a minute of direct eye contact is all he can do, but you’ll never realize he’s not looking straight at you!! We too hold hands crossing the street. Or he walks very close to me where I can direct him with a nudge or a quiet comment.
Questions I love to answer & he will answer you too. His answer is usually that yes he is autistic but it does not define him! Go Brandon!!
qwietpleez
January 23, 2017 @ 11:23 am
Every word went straight to my heart . . . My boys, my oldest two, 24 and 27 – are autistic. They are men. Men who still call me mommy and hold my hand and need me in a way most men no longer need their mommas. People look, they form judgments, wrong ones. They, like your son, are amazing works of art I am proud to display. I wish everyone could see what I see, how each stroke, each color paints a picture of perfection, just a different kind of perfection they are used to ❤️
andieq1950 Andrea Quintanilla
January 23, 2017 @ 1:00 pm
I tell people about my 12 year old grandson, who also has autism. How he has progressed through the years, because as soon as he was diagnosed at 2 and 1/2 he was put in school. He and us learned sign language, so we could communicate. Austin, TX has an excellent school program and through the years of speech therapy and other clases he now talks and is in regular classes. It has been a long and hard process and it will continue through the years. We love him and are very proud of him.
Mary Beth Danielson
January 23, 2017 @ 3:06 pm
Today I wrote my response to you on my website. I read you every week – and every week I am reminded to turn off useless opinions about people in order to really see and pay attention to humans being human.
http://www.marybethdanielson.com/content/yep-i-see-you-and-youre-looking-good
Glenna Toyne
January 23, 2017 @ 6:55 pm
So beautifully written Carrie. X. When I see the Jacks of this world, yes, maybe at times I do look but it’s with love and concern. I want to wrap them up and take away all the hurt and confusion. I have seen a mothers face relax when I’ve offered a few understanding words.
Today is the third year we have been without my beautiful grandson, he had Asperger syndrome, he was and is so very loved and like Jack, Interesting and funny and smart and handsome.
Sending much love to you and your amazing family xxx
Janet (grandmother) God Bless
January 25, 2017 @ 12:35 pm
I recently watched a Father and Mother at a gym to see a younger son play basket ball. Along with an older son with Autism. He stayed on his Dad’s lap as well as moms. About the age of my 17 yr grandson with autism. As much as they would have enjoyed the game their attention was all on the older boy. I looked over once or twice and admired they way they interacted with him. He played with moms hair and kept kissing his father and took up much of their attention. My heart went out to them and yet they were never unnerved by his actions. I thought of you and all the other parents God entrusted with their lives. What special people to be chosen. It is hard but the love, understanding, and courage from all of you is amazing. Once again God Bless you all.
Carol Casavant
January 25, 2017 @ 5:05 pm
I love your posts…thank you…!!