1. Yvonne
    December 12, 2016 @ 12:19 pm

    We know the embrace after the storm. Thank you for sharing your heart. This is a tough road we are on.


  2. Beth Bingham
    December 12, 2016 @ 1:30 pm

    Thank you Carrie, for opening these wounds and sharing with us all the beauty of your love and wisdom of your understanding. God bless you.


  3. GP
    December 12, 2016 @ 2:41 pm

    I enjoy your blog every week, and think you are a gifted writer. I feel that our family had to learn many things the hard way, and I wanted to share a couple things in response to your blog because of that. Please don’t feel judged. You seem to be an amazing, hard-working mom!

    In regards to scripting, it is true that it is not traditional dialogue, but in my experience, it is real communication and an attempt at expressing ideas, opionions, and feelings when access to spontaneous sentences fails because of overwhelming anxiety and other emotions.

    Scripting is like using sign language when other communication is not possible. Morse code is considered a form of communication. If I do not know Morse code, all I will hear is a serious of strange knocking sounds. I recently read that Thomas Edison proposed to his deaf wife in Morse code. She knew Morse code, and thus, the meaning of the message did not get lost on her.

    Maybe Jack was saying that he wished he had more control over the things that happened to him when he said he wanted “for his own life”. Perhaps, he wished he could fix things and take back what happened when he scripted about the cracked skin remedy. Maybe he wishes to be “your everything” as in the song, but perhaps feels like he may be failing you. Sometimes, if we don’t understand the script, it helps to ask, after the storm has passed, what the other person was trying to express with certain scripts.

    Scripting is an opportunity to understand our loved ones better. I find scripting is an opportunity to get answers to the many questions we may have in regard to how our loved ones feel. All I have to do is listen closely, ask questions, and join in when possible. Scripting offers access to somebody else’s world when traditional dialogue is not feasible. Neurotypical folks script all the time. We quote Shakespeare to show romance or that we are well-read. We quote movies to be funny or clever or both. I believe that when neurotypical folks script, it is every bit as an attempt to connect and to communicate as when an individual on the spectrum scripts.

    And lastly, on a separate note, online shoe stores have been a life saver for us. I end up ordering a couple of sizes and styles, and send a lot of the shoes back, but it has decreased stress for all of us in a tremendous way. Now, we go to the shoe store when we do not have to, on the weekend when we are not stressed, just so that my child learns how to navigate shoe stores and malls. However, we did not come to that conclusion over night, and have awful memories of meltdowns at the mall.


  4. Inga
    December 12, 2016 @ 9:39 pm

    Ah. You know, I read your story like I was listening to you speak. I don’t even know you, but what I think is the coolest is your son speaks like the transformer bumblebee. Your story made me smile at just that moment, even before you called it scripting. Bumblebee is the favourite transformer in our house…our son almost peed his pants when we saw a bumblebee car driving in the city… I think your son is amazing, in that, he found a way to communicate how he feels. I read success… take care always. Thank you for your story.


  5. Becky
    December 14, 2016 @ 10:43 pm

    I think that is the best school picture I have ever seen…it is perfection! Jack’s countenance is positively radiant and nearly moves me to tears! Seriously the sweetest.

    I can relate to what you mean about wanting to “talk to your son” because I feel the same way about mine. It’s a hard thing to explain to many people… wishing that verbal communication barrier would disappear, if even for just a moment…whether that means I learn to speak his language or he speaks mine, doesn’t matter to me…

    To have the ease of communication is truly a gift so easily taken for granted. When I have hard moments or long for that barrier to fall, I remind myself that one day it will be lifted. Maybe not in this life, but most definitely in the next, and when that moment comes I’m positive that many of us will stand in awe of individuals like our sons and all they have taught us. Thank you for sharing your journey, and most importantly, for sharing your Jack. You both have taught me so much!


  6. Kelly
    December 15, 2016 @ 12:18 am

    Thank you so much for sharing your story. We all have “our” story but no one really understands until you live with Autism. We navigate every day hoping for the best. Usually if it was a good school day and I didn’t get a call or an email from the school, I sigh with relief. We are in line for an Autism Service Dog and the comfort and companionship I ache for my 12 yr old son will be hopefully relieved by this trained 4 legged friend. Our hopes are wrapped in helping our child in any way bc when they hurt we hurt. We can never give up, never give in, never say never, our boys depend on it!


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