Why God Made Autism
God made the grass and the sky and the mountains and the sea.
He made soft, silky flowers, and buzzing bumblebees, and tall, tall trees outstretched in the forest.
He made rainstorms so we would know wind.
He made droughts so we would know thirst.
He made deep, dark night so we would know the brilliant sunrise.
He made autism.
One late summer afternoon, a 12-year old boy named Jack asked his mother why. He was sitting at the kitchen counter and he was wearing a light blue t-shirt.
Why did God. Make for my autism.
He and his mother had been arguing. They were arguing because in a few days, his three brothers and one sister were starting school. Usually they all start school together and take a picture on the front porch even though the oldest boy, Joey, sighs and rolls his eyes and the littlest boy, Henry, makes funny faces.
Not this year. It won’t happen like that this year.
That’s because Jack is going to a new school and he doesn’t start until a week after they do.
The mom, well, she is confused because she does not know how to handle this day. Does she line all five kids up on the front porch like she always does for the first day of school picture she always takes?
That seems really mean.
Or should she or the dad take Jack out for breakfast where he could order pancakes instead of watching, heartbroken and devastated and embarrassed and sad, from the front porch as the middle school bus pulls up and his brother and all the neighborhood kids pile on it?
She is also a little panicked because she is really, actually worried that Jack might run, frantic, down the driveway and try to climb on the bus on his own and ride to the school that he no longer goes to and she and the dad will literally have to drag him off, all one hundred and twenty pounds of him, kicking and screaming.
This isn’t what he wanted.
This isn’t what she wanted.
Both of them, they wanted to return to what was familiar, in favor of what is good.
This new school, it is good.
It is small.
It is cozy.
It is a chance for both of them to get off of the merry-go-round that made their heads spin and their stomachs flutter.
But see, Jack does not agree. They had been fighting off and on about it for over a week and now she had a headache and was so tired of arguing that she wished school would just start already so it could all be behind them.
Then she felt like a total jerk-head for wanting this. She does not, in fact, want to speed time up—but to take it back and drink it all in once more, like cool, fresh water out of a stream.
The end of the summer always makes her feel this way. It makes her think of her kids when they were babies, and long for their soft, plump skin and the funny way they toddled around and how they each felt in her arms—drowsy and sweet and peaceful—when they fell asleep.
She wants another chance to say all the things she should have said, and to do all the things she should have done.
Maybe she should have forced him to do more homework and read a chapter out loud before bed and practice his multiplication tables while he brushed his teeth. Maybe she should have made him play an instrument. Maybe she didn’t try hard enough to keep him in the place where he so desperately wants to stay.
Maybe she failed him.
She suggested the pancakes.
Jack-a-boo, how about Daddy brings you out for breakfast on Thursday morning, wouldn’t that be fun?
No.
Come on, it’s a nice treat in the middle of the week.
No. I am going. On the bus. For middle school.
And so the argument launched like a rocket, taking on a life of it’s own once more, until the boy interrupted the mom while she was explaining that he was not going to middle school and he knows this and he has to accept it and he loves going out for breakfast and she just wants him to be happy.
Why did God. Make for my autism.
She looked at her son—the boy who screamed when it was time to make his First Communion because he was scared to walk down the long aisle at church and eat the wafer from the priest’s hand.
And after the long ceremony in the stiff navy suit, he sat on the small fence post outside of the church and—gap-toothed and proud like a six-year old who has just conquered both heaven and earth—and gathered his two brothers to his side in an uncharacteristic hug.
He does not like to hug, this boy.
These days, he sits dutifully in the hard wooden pew every week next to his father, twitching and rocking to a song only he hears in his complicated mind, and when the altar boy or girl rings the shiny gold bells, he put his hands over his hears.
God made the stars in the sky and the big yellow moon, and the planets that go round and round.
He made ducklings marching in a line, and fish that swim in schools, and the stealth, solitary jaguar.
He made the uncharacteristic, and the unusual, and the mysterious, and the brave.
He made a boy with a disability inside of his brain; an incapacity no one can see or touch or smell or know.
He made autism.
He also made time; slippery like water through an opened hand one moment, abundant and plentiful the next.
Like a balm to a wound, time heals. It mends. It aids in the long, slow journey that is repair.
The mom waited a minute and then opened her mouth to try and explain all of this, when the boy in the blue t-shirt interrupted her once more.
I guess for pancakes.
Tammy
August 22, 2016 @ 11:10 am
wow…it says it all. My Nash starts 5th grade in 2 days. Today we meet his teacher Mrs. Gray. She is young and pretty and was so excited to be able to work with Nash and his autism. We go to a mainstream school. We have been at this school for almost 13 years. My 18 year old daughter is in college…big age difference.
But, at the end of last year I asked how they recommended for Nash. His Resource teacher recommended one teacher…and his regular teacher recommended another. One of them I knew and one I didnt. I meet with Mrs Gray…..I loved her immediately. She was artsy. My hubby & Nash liked her and thought she was sweet & pretty. She was excited at the chance to work with Nash and said she would take some classes to learn more…that sold me!
But, Nash and I are fighting many times a day…because he does not want to go to school. And he wants his school clothes that I bought…but, we live in California, its still 90 to 100 degrees here. Pants are not a good thing.
Changes….
Beth
August 22, 2016 @ 11:54 am
Sometimes less information is more. Thanks as always for a beautiful Monday morning read. I cherish my two boys. Just sent my oldest back to residence after an amazing week. Best in 1.5 years. Hope to have him back home permanently soon. Puberty is a challenge! You are doing an amazing job!
Carol Bruce
August 22, 2016 @ 2:11 pm
Hope all goes well on Thursday, and Jack enjoys his new school. I use to tell my first graders that fair doesn’t mean everyone gets the same thing. Fair means everyone gets what he needs. You are a wonderful parent who is making tough decisions. You know Jack was not comfortable is his last placement so you are giving him a chance to be himself. Best wishes, Carol Bruce
adoberoseblog
August 22, 2016 @ 8:35 pm
Thank God that He gave Jack a better subject to think about…at just the right moment. Yet…in the end: Why DID God make Autism?
Marie
August 25, 2016 @ 12:12 am
Yes, mine fights “change” too… even when the change is for the better. As mothers, it is also our instinct to want to hug them during tough times… but they do not want or like hugs. I know how very disorienting that can be. :(. Hang in there! Our kids know we love and adore them despite any disagreements!
Marie
August 25, 2016 @ 12:21 am
PS. My son (17) has asked me the same question about God and Autism. Even though the question is heartbreaking to hear from our kids, it is a chance for us as parents to be a source of strength for them when we answer that tough question.
celia hughes
August 29, 2016 @ 10:44 pm
Carrie you and your family are AMAZING! I love the statement you made in the story about a mother’s heart is always in motion. I read and reread your stories with such fascination, and look forward to more. You and your family are such an inspiration! Thank you !
Mary T Clark
February 17, 2020 @ 10:31 pm
I was diagnosed with autism in early childhood, and raised Christian. Needless to say, myself and my family had challenges and hardships to overcome. If this was all God’s will, then I want nothing to do with my so-called Heavenly Father!