Twelve
I always write a letter to each of my kids on their birthday. It’s a nice way for me to tell them about all of the things they like to do and eat and say, and to describe how much they’ve grown and changed over the course of the year. I keep them in a small journal on the bookshelf in my office.
This is Jack’s. Today is his birthday.
Dear Jack,
You know what? I really like writing you letters. I like being able to tell you everything I’m thinking and feeling.
I know if I were to sit next to you on the couch or at the kitchen table and try to tell you these things, it would be as though I’d released a thousand bees into the room. Your ears would just buzz and buzz with noise and you would get frustrated and overwhelmed.
Today you are twelve.
You were born on Mother’s Day, three days after your due date, on a rainy, cold Sunday morning in Buffalo, New York.
My labor—the process women go through so their bodies can deliver a baby—was pretty fast. You weighed nine pounds, three ounces, which is pretty big. You were healthy, and strong, and very, very cute.
Two days later, on the ride home from the hospital I remember looking out the window of the car and noticing all the little green buds on the trees. Seemingly overnight, it was spring.
Twelve.
Your feet are bigger than mine, and you stand taller than your older-by-one-year brother Joey.
You like your hair short, almost in a crew cut, and you never, ever take your glasses off except to sleep at night.
People find you very charming, I imagine in the same way they find a grumpy old man in a button-down sweater charming. You are eccentric, and rigid, and you say whatever the heck is on your mind.
You began planning your birthday party back in April. You wanted the invitations to go out to exactly four friends on exactly Friday, April 22nd for a party on exactly Friday, May 6th, from 5:30 pm to 7:30 pm.
And then on Thursday, April 21st, you decided to cancel the party. You didn’t want it anymore. You kept saying “Spread the word. No party,” over and over.
I don’t know what that means and you wouldn’t tell me why and I felt sad and frustrated and unsure. All you would say is, “The party. It is off.”
And when I asked you again why, you said, “It is just for my birthday. It for me. To decide.”
“Okay, then, what do you want to do?”
“For Dairy Queen. We will go to Dairy Queen.”
When I think about you being twelve, I want to say I don’t know where the time went like all the regular moms with regular kids do, but the truth is I know exactly where all the time went. It went into social stories and therapy and trips to Redbox and arguments about cake mix.
Like the sand pouring from the top of the hourglass to the bottom, it went into anxiety and medication and evaluations and IEP meetings and mother-&^^$ homework.
See, Jack, time is a different thing for you and me. Time is more than a ticking clock or the second hand on a wristwatch. It is alive, and it is running away from us like a house on fire.
Part of me wants to speed it up so I can know what you will look like and think like and be like in the future. I have always longed for a crystal ball to predict the preschooler, the elementary-schooler, the adolescent and teenager and man you will become.
Will you have a job, or live on your own? Will you find someone to love you exactly as you are?
Will you be lonely?
And yet I want time to slow down, so I can look at you and love you and dry your tears and sing you songs and hold your hand.
Speed up, slow down, speed up, slow down.
Speed up.
Slow down.
Oh, my Jack-a-boo. You were just the cutest baby. Even though a lot of my memories are cloaked in the dark, velvety robes of sleep deprivation and worry, I do remember how cute you were.
I regret. Oh, how I regret. I regret all the times I begged you to use your words even though your tear-stained face told me the story.
I regret all the times I reminded you to look in my eyes if you wanted milk, to grip the pencil the right way, to go to sleep even though autism’s complicated rhythms left you wide awake. I regret all the times I left you in the dark, because I was in the dark myself.
A lot of times I think I forgot—and still forget—that all I have to be is your mother. All I have to do is fold you in my arms after a long day at school, and smooth your worried brow, and tell you everything is going to be fine, just fine; even if I’m not so sure.
It was never about changing you, Jack. I hope you know that. I never wanted to change who you are. I still don’t.
It was about watching a toddler throw a dish clear across the restaurant and sobbing because the lights were too bright, the chair too squeaky, and the voices too loud. The world was too much.
It was about looking around at so many stricken faces and confused expressions and pitying looks, and knowing I can’t change you and I can’t change them and that only left me with one choice; to begin building a bridge.
I guess what I want is for time to stand perfectly still. I want to hold it in my hand like a rare, precious, sparkling jewel. For one single day I don’t want to think about autism awareness or academic goals or speech therapy.
Today is that day. Today, as you told me, is for your birthday. It is a day to celebrate the person you are; my funny, rigid, smart, tall, complicated Jack-a-boo.
Maybe you’ll find this letter one day, and if you do, I hope maybe you’ll realize how very hard this was for me; for all of us, and how I struggled every minute of every day to make the right decision.
I hope on paper, you discover that the loud, buzzy bees are actually gentle, luminous butterflies.
Mostly, I hope you can read between the lines and know that I loved you all along.
I took a picture of you this morning when you walked down the driveway to the bus stop. I don’t even think you knew I was behind you. It was a rainy, cold Monday morning, and you walked with your arms crossed and your head down.
Later, after you left for school, I looked at the picture and I saw, in the upper right-hand corner, the hint of a light blue sky amongst the white clouds. Seemingly overnight, it is spring.
Happy sweet timeless birthday, my Mother’s Day baby, my springtime child, my Sunday sun.
Love,
Mom
Donna (Gogi) Gray
May 9, 2016 @ 12:16 pm
Happy birthday dear sweet Jack! Happy birthday mother…as a grandmother of a nine-year-old on the spectrum, I wish I could tell you just how much your writings influence and encourage me! I pass them onto his mother in hopes that she too will find insight and encouragement in a complicated world… Praying for you and your family and hoping Jack enjoys his trip to Dairy Queen!
Sunny
May 9, 2016 @ 1:22 pm
Happy birthday Jack. Coincidentally, today is my Jack’s 11th birthday! He is similar to you in so many ways!
Susie vanderKooij
May 9, 2016 @ 4:50 pm
Thank you Carrie and Jack, for being born….for teaching us to accept all our children have, and to embrace all of it!!!!
cherisaccone
May 9, 2016 @ 8:36 pm
I’m fairly new to your blog, but wow, I feel like I know you because your voice echoes through the endless chambers of autism and all the joy and suffering that comes with it. I get two lines in and I’m already reaching for the kleenex. It has strangely helped me to see your pain, because for me, I question whether or not I’m making too much of it all. Then I read your words, and I know that I’m not. Thanks for reaching across the chambers and being vulnerable enough to let your trembling heart be seen to people like me. I so desperately need it.
rocketbotmom
May 9, 2016 @ 10:14 pm
Happy Birthday Jack! I hope he had a great day no matter how he chose to spend it!
God Bless.
Maryanne
May 9, 2016 @ 11:05 pm
Happy moms day to you Carrie and happy birthday to Jack! I love when other grand moms comment. As a grandmom of an 11 yr old on the spectrum I like to hear from others like me. Thanks as always for sharing.
Kelly Lesinski
May 13, 2016 @ 9:42 pm
Carrie, your writing always touches my heart. You have a gift of communicating so well that we all can connect and understand each other better.
Janet A.
May 14, 2016 @ 7:45 pm
Happy Birthday to Jack and his Mother. Being a grandmother with a grandson I adore but cannot understand how his mind works because Autism is bittersweet. He is 17 and sweet but Autism is bitter. I have watched over the years, his mother (my daughter) continue to search for answers from the beginning and always remain positive, loving and encouraging. Now at 17, I see changes in both she and my grandson. Frustrated with no answers as to where do we go now. Will he ever be independent or always remain at home. Enjoy Jack on this Birthday as I continue to pray for you and all the mothers around the world who have no answers. God Bless.