1. Carol Casavant
    February 15, 2016 @ 10:18 am

    You and your family are an ispiration to so many of us…thank you…


  2. Jessica
    February 15, 2016 @ 10:31 am

    I feel like we are soul sisters and our boys are so similar. I could have written this very post. I just want the world to know my son the way I know him. He has so much to offer the world.


  3. Lisa H
    February 15, 2016 @ 10:37 am

    We went to NYC for a few days at Christmas this year. Halfway through the trip my son was complaining about his shoes. We had to search for a store with the “right kind” of shoes in an unfamiliar city. He had grown 2 sizes! No wonder they hurt his feet, yet he did not tell me.


  4. Scott Wilcox
    February 15, 2016 @ 11:11 am

    yup! So much of what we see on the outside doesn’t reveal what is happening to our kids on the inside.


  5. Vivien
    February 15, 2016 @ 11:39 am

    Youre doing a great job!


  6. Tiffany
    February 15, 2016 @ 11:47 am

    Thank you for helping to educate the world about our kids. You have a gift for putting your thoughts and feelings down so eloquently. I often tear up when reading your posts because it’s like someone has tapped into my head and written what I cannot always express. And because it helps me feel connected to someone living a similar life. Please don’t stop sharing.


  7. Deb
    February 15, 2016 @ 12:26 pm

    You made me cry. Again.

    I’m in the process of trying to figure out the causes of and the treatment of my daughter’s aggression and self injurious behaviors. Reading articles breaks my heart, so little is known because our kids can’t tells us. So, to be fair, I was crying before I read your beautiful blog post.

    I came across this video awhile ago, not sure how I got there but it was good.


    You’re a wonderful mom, even when you don’t feel like it.


  8. Jeannie
    February 15, 2016 @ 12:38 pm

    Another wonderful post — thanks so much for sharing. I can understand your mixed feelings about sharing details about Jack’s life, yet it does increase understanding and empathy, I know it does.

    I feel for you with the boot thing too. Once I got my son new sneakers because his old ones were getting too tight. But for the first 2 days he complained vehemently about the new ones every time he put them on. I assumed he was just objecting to the change, so I kept saying “No, you have to wear the new red ones.” It turned out there was a big wad of paper stuffed into one of the toes. Another one for the “mommy fail” list!


  9. Lisa
    February 15, 2016 @ 12:49 pm

    Thank you for writing, and I hope you’ll keep sharing the journey with us. Your blog has been very helpful to this grandma who takes care of her autistic grandson each week. He’s only four years old but I’m learning new things all the time. We do need to educate the world about these great kids who also cause us great concern for their future. You’re doing your part. I hope I’m doing mine.


  10. Leeann
    February 15, 2016 @ 1:03 pm

    Everything that you hope to accomplish in writing your blog, you accomplish each time I read it. You have opened my eyes, my heart and my understanding every single week. I have never viewed a person with autism in the same way after reading your blog.. and I was already one who worked with people with autism. I wasn’t unfamiliar. But you offer a perspective that resonates with my heart, as a person, as a parent, as a Mom.

    Your blog, and your family, you, and most especially your son, are amazing.


  11. April
    February 15, 2016 @ 2:03 pm

    Please keep writing your blog and sharing all of the details.

    I see many similarities between Jack and my son (who is a few years younger). My son is 8 years old and has Autism. He is just starting to notice that the world sees him differently. Anxiety is really starting to become a daily struggle.

    I see similarities between my own daughter (who is Jack’s age) and Jack’s siblings as they try to help their brother with autism –and how they have to adapt to autism’s often rigid ways.

    And most of all, I can identify with so many of your thoughts and feelings as a mother of a child with autism. –Your fears about how your child will find his way in the world and how the world will respond to him. I appreciate that you not only share the struggles, but also the touching, beautiful and funny moments. Your honesty (and sharing ALL of the details — the good, the bad, and the messy) reminds me each week that I am not alone. Thank you!


  12. Rosanne
    February 15, 2016 @ 3:37 pm

    For what it is worth, I think you are “diplomatic, yet honest. Fair and authentic” and we are “able to see and hear and taste” your family and your autism for ourselves. You, Jack and your family are inspiring.


  13. gdutter
    February 15, 2016 @ 4:51 pm

    I love Jack. And Joe, Rose, Charlie, Henry, and the dog. My grandson Noah is 8. On the scale. I want to respond to you every week. Noah goes to a school now “where everybody loves me at Oak Hill”. He is on meds. His anxiety is less. He talks more, sometimes you can’t understand him, but most times you can. These decisions were so hard for his parents. He loves his tablet. Mine craft. Zombies. He makes things out of discarded tubes and paper. A whole kitchen set. He can’t read yet but my daughter believes he will be an engineer. Or a garbage collector. When he is sad it breaks my heart. He has a 6 yr. Old brother. My daughter also believes he will live with her forever. I read your blog and I laugh and weep. Yes, I love Jack.


  14. Cindy
    February 15, 2016 @ 5:31 pm

    Your blog helps so many people understand him! There is so much that you write, that I can see happening or has happened with our precious son Jack! It’s comforting, heartbreaking and inspirational! Thank you.


  15. Sara
    February 15, 2016 @ 5:36 pm

    The most absolute and well-put truth about autism:

    “..that behind every tantrum lurks a mysterious inner torment, that he longs to be like everyone else in the world the way you or I want to be supermodels or millionaires or Oscar winners.”


  16. rocketbotmom
    February 15, 2016 @ 11:33 pm

    You bring an awareness and “realness” to autism each and every week you hit that “publish” button. Sharing the good, the bad, and the ugly shows everyone what it is like to live with someone with autism. I know you must help so many each week that realizes they are not the only ones going through this scary journey.
    I love all the “Jacks” and hope you help our society realize that maybe the “Jack’s” aren’t that different than anyone else.

    Thanks for continuing to share your journey. You definitely have a gift!


  17. Susie vanderKooij
    February 16, 2016 @ 8:16 pm

    You are a Warrior alongside Jack each and everyday….I am so incredibly grateful for you and Jack your family and what you share….I share it with my family and we embrace, understand and welcome you into our lives any day, anytime, always!


  18. juliep
    February 17, 2016 @ 11:40 am

    I am also grateful for how you share about yourself–your feelings, both the upbeat, rah-rah and the hard honest ones when you admit that you aren’t one of those mythical always uber-patient, know all autism moms. It makes me feel normal.

    I’m honored to ‘know’ you and Jack.

    And wow, can you write…

    I offer our story to you like a tiny, imperfect pearl balanced in the palm of my hand.
    Thank YOU for sharing your story.


  19. Frank
    February 18, 2016 @ 6:31 am

    Hi Carrie, i’m a bit on technology dinosaur but i found your blog whilst googling ASD one day, my son was diagnosed on the 26th May 2015 and i now find great solace in your weekly blog, it almost feels like we are part of your family ! I think you mentioned you have Irish heritage that explains the excellent writing 🙂 Keep up the good work !


  20. leagle11
    February 20, 2016 @ 7:34 pm

    Laugh, cry, …………bring it on, we can do this!!!


  21. GP
    February 21, 2016 @ 8:26 pm

    You truly are a fantastic writer! I am wondering if Jack would have an easier time expressing himself through keyboarding. Based on some of your recent posts, he seems to enjoy being creative on your computer. Maybe it would help him if he expressed himself through writing, starting with just a few sentences at a time. Perhaps, you could create a little corner on your website, such as “Jack’s corner.” He could post on Mondays and express what he enjoyed that week or what frustrated him. Alternatively, he could start out by keeping an electronic journal just for himself. It could be good practice. That way, you could teach him a little about expressing himself in writing, while at the same time learning from him about him. I have read phenomenal blogs by adults on the spectrum. Some of the authors are non-verbal. Several of the blogs are by writers who have become activists or artists. Blogging, of course, reaches so many different people, and has created a community in which people on the spectrum get an opportunity to really support each other. It is so very helpful to read about adults who grew up with sometimes extremely similar sensitivities and challenges as my own child, and it gives me a lot of hope to read that so many people have developed coping skills pertaining to certain challenges and have become proud of their strengths and of who they are.


  22. Allyson
    April 8, 2016 @ 9:50 pm

    Thank you so much for sharing your experiences. As a mom of an 8 year old boy similar to Jack, it is so helpful to hear the perspective of another mom. Small shoes aside, you seem like an amazing, patient and compassionate mother. Keep writing!


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