1. Sandy Kaufman
    December 14, 2015 @ 1:14 pm

    Carrie – it is really amazing how you can write a blog at just the right time to give me another perspective, from one mom of a child with autism to another. It’s amazing how similar, and yet of course unique, our sons are and it seems they are venturing down the same paths at the same time. We too are looking at another possible school for our son. He will transition to the 6th grade in fall of 16/17 and physically, another building in our public school district. We are entertaining/investigating a charter school in our system that focuses on children with autism. Mark is very curious and wants to go see the school. Im trying to gauge if this is simple curiosity or if he really does not want to continue in our public school system. We have a visit scheduled for after the new year.


  2. Jennifer Witten
    December 14, 2015 @ 3:48 pm

    Beautifully written! I felt everything you were saying!


  3. Ellen Walker
    December 14, 2015 @ 4:45 pm

    Carrie – I always enjoy reading your blog and it takes me back to when John was much younger. At 36, he still feels “different”, mostly in a good way. Until it comes to having a girlfriend, as he watches all of his friends get married and have children of their own. These are things I can not help him with – it is painful to watch him struggle with things he has no control over. You have such a wonderful way of looking at Jack and his “differences”! I cannot imagine having more than one child and dealing with autism at the same time. However, Jack appears to be very lucky to have wonderful siblings that are supportive of him. By the way, John did go to another school for three years but we found that he was different from the kids there, as well. I have learned to accept that he is in his own category and the unique, intelligent, compassionate person he is will always be fine with me. One thing I have found helpful with John is to make a list of all of the positive things in his life and then one of the not so positive things. It is a clear way for him to see that the scale tips to the positive side every time. Keep writing and giving other families insight into the world of autism.


  4. Terri Trier
    December 14, 2015 @ 10:04 pm



  5. Tammy Hribar
    December 14, 2015 @ 10:55 pm

    I got done reading this and had one comment – awesome. Simply awesome. My daughter is 26 and has Down Syndrome. She is out of school now, but we struggled with many of the same issues you write about. She had many great paraprofessionals who are still a part of her life. The journey can be difficult, but so worthwhile. I love reading your blog. Love the picture!


  6. Jamie
    December 15, 2015 @ 10:17 am

    I was at the end of my rope this year with my son. Until one teacher said. “I can teach him”.
    And she has like nobody else could. It helps knowing someone else cares about your son and you are not doing it all alone.


  7. Joanna Neale
    December 15, 2015 @ 9:29 pm

    Thank you. xxx


  8. LInda
    December 29, 2015 @ 8:50 am

    I come from the perspective of a teacher. I like to think that I am more sensitive to both my students’ and their family’s needs simply because I have a brother with special challenges, but this reminds me again of the uniqueness of every single situation, whether the special needs have been identified or not.


  9. terismyth
    December 30, 2015 @ 11:28 am

    Carrie- You are making the right decision to keep Jack in public school. In my experience, public school offers more services than private and you son will model after the other kids that are not on the spectrum. He will do fine. There will be challenges as all children face in middle school, but those challenges will give your son experiences that will prepare him for the bigger world out there.
    When my Andrew was in middle school he was bullied by one of his grammar school friends in the locker room. This boy would mess with the hood on my son’s sweatshirt repeatedly until one day my son had had enough. My Andrew had training in Taekwondo and found a way to trip this boy when he was charging at him. After that embarrassing moment, Andrew was left alone. He was able find a few very close friends to hang with that loved video games too and made it through junior high.
    Now my son is in college. He found his way by doing what he loves, singing. this is where he “found his voice”.
    I hope your Jack finds something he loves and connects with it and the people around it. It will change his life.

    Keep on loving him like you do and never give up hope that he will live a happy life. And don’t forget to take care of you.
    Happy New Year.


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