4 Comments

  1. Judy O'Rear
    July 27, 2015 @ 1:17 pm

    I love the way you have with words! I feel you are lurking outside our window and describing my Grandson, Ben. He is almost 9 and his similarities to Jack are uncanny. He has his pancakes everyday, his nights are better with Melatonin and his days more focused with Daytrana. His licenses plates are rockets ships (Atlantis or Endevor), and music is a constant in his mind. He jumps on a trampoline in the family room so our beds will not fall down. His fears are of fireworks and every time he hears a siren he ask “what’s the emergency” . We too know there is no cure! My prayer is for understanding and patience! Thank you for helping me see with your words!

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  2. F.
    July 27, 2015 @ 3:10 pm

    Wow! Your posts always leave me breathless! My son is 27 years old. Other than being much more verbal (which can be a mixed blessing), he is very much like your son. I want to tell you that it will get better and that autism will go away, but we both know that is not true. I will tell you that my son was able to graduate from college (where he even belonged to a fraternity!) and holds a regular job. He still lives with his father, but his 24 year old neurologically normal brother does, too. My son also took clonidine. He ended up being hospitalized for depression and anxiety when he tried to jump out of our car on the freeway. He was 11 years old. That was when we finally received the PDD-NOS diagnosis that explained everything we had been going through for eleven years. While obtaining a diagnosis was the impetus it took to receive the necessary emotional support special education services he needed, I still resent that it took so long and so much suffering to get there. Our marriage did not survive, but it probably would not have survived even without his diagnosis. Unfortunately, my ex-husband forced our sons to “choose sides” in the divorce, and I have not seen nor heard from my sons in 3-1/2 years.
    I don’t write all of this to discourage you or paint a dismal picture. Despite our family’s problems, my son is successful. Your son (and your other children) are so fortunate to have you and your husband. Other families dealing with autism are fortunate to have people like you offering support. Know that there are many of us out there who have been there. You have our support, too.

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  3. Jeannie
    July 27, 2015 @ 5:57 pm

    Awesome as always.

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  4. Always have hope
    July 27, 2015 @ 6:08 pm

    There CAN be a cure for autism. There is only no possibility when there is no hope or dream of a cure. My son was headed for the court system and inpatient psychiatric long term care. Three years later, he is a happy, indistinguishable 9 year old boy. I fought for a cure. I saved my son. Autism wasn’t “his way of thinking”. It was a future limiting, painful illness.

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  5. Tammy
    July 28, 2015 @ 1:14 am

    Today, this made me cry. I can’t explain to people how autism is for my son. But, the craziness, the focus-ness, the “I want it now” – I need it now is more like it, the inability to sleep like a regular person and how as his Mom – I can wake up when he needs me to know he is there and awake. Autism is crazy-making in my household….I get it more than my husband…because I have to. Someone has to make it ok for Nash to function like he has to.

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  6. Sam
    July 28, 2015 @ 3:16 am

    Your post makes me cry. How sad for your little boy that you don’t try other options. My almost 7yo (who was diagnosed at 4 1/2) is in managed recovery. The stims, the rigidness, the inability to play in groups lessens all the time as he heals. His lab work supports the behavioral changes we observe. For many there is a cure!

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  7. oshrivastava
    July 28, 2015 @ 3:25 am

    Reblogged this on oshriradhekrishnabole.

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  8. Deb
    July 29, 2015 @ 7:56 am

    It’s hard. Hard for you as his mother and hard for Jack. I often wonder what goes through my own daughter’s head. What does she think about? What does she dream about? And I worry what will happen to her when I’m gone.

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  9. Jett
    July 30, 2015 @ 10:02 pm

    I want him to know it is not only for him. He is not alone.

    Reply

  10. wifeysinger
    July 30, 2015 @ 10:46 pm

    well, weeping again.
    yes to all of this! and thank you.
    i love your last few sentences. i am waiting for my boy elijah. and that’s fine with me.

    Xo

    Reply

  11. Sarah P
    July 31, 2015 @ 4:15 pm

    I wish I didn’t cry after reading every single one of your blogs! ?

    Reply

  12. skuysons
    August 1, 2015 @ 7:40 pm

    Can I make a comment? There is no cure for life.

    Reply

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