1. candidkay
    September 15, 2014 @ 4:49 pm

    This is so beautifully written (as is his dinner menu:)). He even spelled Caesar correctly! What child does that? 🙂 There is hope. And my mantra is–one day at a time. Easier some days than others.


  2. Julie, mother of Fritz
    September 15, 2014 @ 5:02 pm

    Thank you.


  3. Donna
    September 15, 2014 @ 5:14 pm

    I feel like I’m reading about my own son. His name is Matty and he is 10, he is in fifth grade and autistic. He is functional. VERY functional! But so many things escape his care. He can spell way beyond his grade level, always could. But to connect with the words deeply. To understand the academics that are being taught to him, with feeling and curiosity, beyond just facts and figures, well, that just doesn’t exist in his mind. Not like typical 10 year olds. I worry. I worry so much. Next year is middle school. And then high school. And it’s all getting more and more difficult. Sure, he doesn’t need help showering or toileting any more. But is he getting equipped for the world? I don’t know. And I don’t know exactly how to do it. And neither do “experts” or his educators either. Everyone is well meaning. But that’s not enough to make him succeed independently in this crazy world. I worry.

    Thank you for writing. I just found your blog through momestery and it’s good for my soul to read your story, Jack’s story. Thank you.


  4. Shanti
    September 15, 2014 @ 10:26 pm

    This post makes me want to cry. It is so true and so well said. Handling autism for today is difficult enough but the reality is that our kids have to grow up and face the world and suddenly all that we do to prepare them may not be enough.


  5. Colleen
    September 16, 2014 @ 7:10 am

    My son is 11years old , entered middle school this year. I see him getting farther behind, I want to stop that from happening but I don’t know how either. I want him to graduate , but I know how you feel that it just might not happen. I worry, and overwhelmed too. All I can do is take one day at a time, and walk every step in this autism world with my son.


  6. Josie
    September 17, 2014 @ 6:24 am

    Bless you, mama. I hear you.


  7. Cate Pane: The Clear Parent
    September 17, 2014 @ 3:47 pm

    I am dealing with a different diagnosis. I am also overwhelmed. It is hard for me NOT to look at the future. I vacillate between taking one day at a time and curling into the fetal position. Each day, I awaken with new hope. It’s all I have, although it isn’t always enough. Thank you for communicating your thoughts and feelings so beautifully. I am sending good thoughts your way.


  8. Tanya W
    September 23, 2014 @ 12:55 pm

    Tears are streaming down my face. Relieved to know I am not the only one worrying if my 8 yr old will ever be able to live without me in this world… just today he went off to school with his shoes on the wrong feet because he insisted they felt better that way, and I didnt have the strength to continue arguing otherwise.


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