6 Comments

  1. Mary Milheim
    August 28, 2017 @ 11:01 am

    The puzzle blanket seems appropriate, doesn’t it?

    Reply

  2. GP
    August 28, 2017 @ 1:49 pm

    I don’t know. He does seem to have interests. Disney movies and music sound like wonderful interests. The world of movies and music may be accessible to him and offer a source of relaxation and learning in a way a that our neurotypical world fails to do. Our world can be very confusing with its sarcasm and dishonesty. Our world can be cruel and anxiety-inducing. Everybody needs to be able to relax in their own way, especially when school or work is difficult and stressful. I enjoyed reading Ron Suskind’s book, ‘Life, Animated,’ in which he describes how watching Disney movies gave his son a voice and helped his son learn about the neurotypical way of interacting and communicating. Maybe these movies are helping some children more than we can imagine.

    Reply

  3. Stephs Two Girls
    August 28, 2017 @ 2:48 pm

    Yes, exactly how my girl was when younger, constant DVDs on repeat and then now she’s an iPad addict. It’s tough to tear her away too, but when we do it means so much more to us. She’s happier indoors most of the time though. It’s our expectations which need to change really 😔

    Reply

  4. Anne-Elizabeth Straub
    August 28, 2017 @ 3:09 pm

    Carrie,

    I read every one of your Monday blogs and I marvel at your ability to describe this journey that includes you and your whole family, and me, too.

    While I do not have a child on the autism spectrum, the feelings that you evoke are familiar and true and very brave. They resonate in my heart.

    Autism is an unwelcome guest, but, with regard toI you, it doesn’t know with whom it’s dealing.
    It won’t gain the upper hand or take over. If it had any sense, it would slink away,

    It probably won’t. (Unwelcome guests almost never take a hint!) but I’m sure you’ll figure out ways to cut him out of the conversation; move him out of the center of things or invent other strategies I might not even imagine.

    You’re already doing it.

    Reply

  5. terismyth
    August 28, 2017 @ 7:36 pm

    I have shared some of your feelings too about wishing the autism would go away. But, with out the autism, I wouldn’t have had the chance to raise my son. Autism doesn’t define him. It causes issues that a parent must deal with in regards to socialization, focus and idle time.

    I spent many years driving Andrew to Piano, voice lessons, Taekwondo classes, boy scout meetings, swim practice, track meets, and choir concerts. These activities kept him from being stuck in his room in front of a screen. It enabled him to meet friends of which he has many and a few very close ones. It kept me from getting stir crazy every time he locked himself up to be by himself. I knew that wasn’t good for him.

    Yet, even at 24 he still needs to decompress, to be by himself and regroup. I don’t know what it is like for him. I can’t begin to understand how hard it is when we entertain or what it is like for him in a crowded grocery store.

    So when you are struggling for the meaning of the world we live in raising autistics, cut yourself some slack. Know that Jack will find his way and he will be grateful for all you have done for him.

    Reply

  6. George Chris Michas
    August 29, 2017 @ 1:55 pm

    How can anyone say autism is anyone’s FAULT? There can be many reasons for autism. They are genetic (as is genetic predisposition) and environmental. And it is too much to conceive of every angle in life. Me and my brother David have issues while my other brother and my sister had long careers and 4 children each. Is it Mom’s fault? How could it be. She did the best she could with what she knew. There is too much to figure out every single angle.

    Reply

Leave a Reply

%d bloggers like this: