6 Comments

  1. Elizabeth
    April 24, 2017 @ 8:46 am

    I love this. I have been asked this question many times about my two sons that have autism. People ask me if I would “fix” them. The thing is, they are not broken. I always tell people that if you take away the autism, you take away their personality. I wouldn’t change them for anything.

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  2. Susie vanderKooij
    April 24, 2017 @ 2:22 pm

    A beautiful piece, and certainly made me wonder what it would be like….

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  3. Vickie
    April 26, 2017 @ 10:59 am

    That is hard because I always say that I would not change my son at all……. if I were to be able to live forever.
    But I won’t and as many things that I have put in place for him, I worry that something will go wrong. He does not have siblings, he can not take care of himself, he does not understand safety, he does not know when someone is taking advantage of him and will not understand if someone were to do worse than just take advantage. He is verbal but he can not communicate if something is wrong or if someone or something is hurting him. He will out live everyone that I have set up as guardians when I am gone. He is the perfect victim for all of the horrors out there in the world. He is 26, so the hope of making any more progress is minimal. If I were to live forever, I would not change a thing about him. But someday I will be gone and he will be at the mercy of strangers,,,, THAT is what my nightmares are made of.

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  4. Beth
    April 27, 2017 @ 6:51 am

    Beautiful and thought provoking. What we all struggle as parents with each new article on Autism and genetics comes out. I to am torn due to both my boys having Autism and having no one to care for them after I am gone. Their Autism is what makes them who they are. I’ve tried to imagine my oldest especially without all his quirks that drive me crazy and I wouldn’t recogonize him. I love my boys for who they are and can’t imagine them any other way. I wish they didn’t have to work so hard, but it also has made them survivors. I always tell parents how lucky I am; there are parents far worse off who never get to bring their babies home from the hospital or spend months in the hospital watching their children in severe pain.

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    • cheryl thomas
      April 30, 2017 @ 5:53 am

      I agree with Vicki. Someday we will not be here to protect them. I pray everyday that God would deliver my son from autism and give him his voice.My son is like “magic, like fireflies in a jar” and I would never want to lose that but then everyday he has grey clouds covering him and I see him feeling lost in his world. So yes, yes I would want the healing, either way it takes tremendous faith in God to pray or not pray for healing.

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  5. Karen Sutton
    April 30, 2017 @ 1:02 pm

    I hate this type of question–I feel like there’s no way to answer it. The eternal optimist in me would tell you that my son is not broken and doesn’t need a fix or cure. But if I’m honest and talking from the deepest part of my soul I would take that cure in a second. I would want my son to be without autism, no sugar coating it. He is the sweetest, most innocent 15 year old boy I know. I know the autism is why he is so childlike and the funny, sweet kid he is today. But if there were a way he could be cured, and make his way in the world like his three older sisters will be able to do, I would sign him up. If there was a way for him to live on his own someday, get married, have his own children, or have a career he would love, I would so do it. Autism sucks and I’m not going to apologize or try to make it all okay. Yes, I accept his diagnosis and love him so deeply it hurts and he is a fabulous & loving kid just the way he is. But if there were a cure? Oh yes, I’d give it to him today.

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