10 Comments

  1. Heather King
    January 26, 2015 @ 11:44 am

    A friend turned me on to your blog. I have to say I am beyond words. I am the Mum of a 9 yo Aspie boy and I can not tell you how closely I relate and emote with your every word. Thank you! You make me feel less alone in this journey!

    Reply

  2. Kelly Lisle
    January 26, 2015 @ 2:56 pm

    Life is never dull that is for sure! My two boys (just turned 16 and 7 1/2) ensure that every day is different for me, my husband and their 3 sisters. As a family we are constantly learning, adjusting, accommodating and loving – I am still taken aback that, despite advances in awareness, there is such a lack of understanding and empathy for anyone with a difficulty that cannot be seen. I wish you and your family love and happiness despite the challenges and lemons life will continue to throw your way.

    Reply

  3. Teri
    January 26, 2015 @ 5:50 pm

    I’m sitting here, after reading your Monday blog, in tears. I feel like I know you, and that you know and understand me. Although every child on the spectrum is different, we all face very similar challenges and somehow we get through each day, however low or high, and find the goodness of what that day has brought. I do look forward to continuing to read your blog as today, for me, was a tough one and you’ve lifted my spirits!

    Reply

  4. SW, Yorkshire, UK
    January 27, 2015 @ 10:57 am

    I love the way you write and I really see myself in the mom that you describe. Being a parent to a child with autism can be phenomenally rewarding and excruciatingly frustrating. All parenting is like that, but I think maybe parents of NT kids have more than a nanosecond between the high and the low…

    Reply

    • Rachel Benson
      January 27, 2015 @ 8:23 pm

      My non verbal nine year old autistic daughter is currently spitting into my bathroom sink and I am letting her for it could surely be worse. She has her own list of idiosyncrasies, quite different than the ones listed in this post, but the experience is so much the same. Thanks for sharing.

      Reply

  5. mom
    January 27, 2015 @ 11:11 pm

    I love this – and I completely relate. Sometimes, it’s a piece of cake, sometimes it feels like a scene from “Candid Camera.” Thanks for sharing these moments – they help immensely.
    I’ve just started reading “Be Different” and it has been incredible so far. You might like it too.

    Reply

  6. Katherine Brock
    January 28, 2015 @ 9:40 pm

    wow. Just wow. It’s like reading a diary of my inner thoughts. I remember reading an article about a vaccine for autistic kids that was being researched and I thought at the time that I wouldn’t give it to my son. He is who he is as God made him. He is incredible and frustrating and insightful all at the same time. But he is who he is. And I am a better mom and person for it.

    Reply

  7. Yalmik
    January 30, 2015 @ 11:03 am

    thank you!
    Your words are an open door to understanding for those of us who sit on the sidelines watching our sisters, daughters navigate these waters, wishing we could do something but to end up only being cruel, insulting, condescending, or shaming our loved one. I love your blog. It’s helps me in such a personal way. It clears a path for me to understand my roll and the path my loved one walks.

    Reply

  8. Fiona
    February 3, 2015 @ 3:53 am

    “To me, these simply mean that one cold winter morning, I will find myself standing alone in my kitchen, clutching a box of cake mix that I snatched out of my son’s hand because I could not bear to see him flapping his hands and waving the box for one more single second.”
    Yes. I know that moment Carrie.
    But then on Sunday, out of the blue my 11 year old Aspie said, “I know something else that is pretty, you are pretty Mummy”

    Now THOSE moments are the ones to cherish.

    Sometimes they come from nowhere and sometimes the timing may be completely wrong, but sometimes, the world just stops spinning while you savour that moment.

    Reply

  9. Maruso
    February 6, 2015 @ 8:09 pm

    As a parent of an Aspie and a special education teacher I can relate on so many levels. I had the background and knew in my heart before he was ever diagnosed and it still left me speechless when the words were said. I love each and every day with him and smile, cry, yell, dance, worry, and pray at the same time.

    Reply

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